This is an interview with Z’s grandmother with a focus on Z who has severe physical disability and multiple impairments due to brain injury when he was a baby. The story emphasizes the burden on the grandmother to take care of Z and kept him alive and cared for when the marriage of his parents fell apart. His condition presents a common situation of people with severe and multiple disabilities who can rely solely on their family for survival and don’t have meaningful education and rehabilitation services. It requires critical attention to meet the dire needs of families through support system construction and combination of resources from diverse directions for problem solving.

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Not Giving up as Long as the Child is Still Alive

  • Lichuan Pan

摘要

This is an interview with Z’s grandmother with a focus on Z who has severe physical disability and multiple impairments due to brain injury when he was a baby. The story emphasizes the burden on the grandmother to take care of Z and kept him alive and cared for when the marriage of his parents fell apart. His condition presents a common situation of people with severe and multiple disabilities who can rely solely on their family for survival and don’t have meaningful education and rehabilitation services. It requires critical attention to meet the dire needs of families through support system construction and combination of resources from diverse directions for problem solving.