In this chapter, we explore how people with chronic illness understand and experience loneliness in their everyday lives, revealing its complex embodied and relational dimensions. For these individuals, loneliness manifests as personal insignificance (feeling broken or defective), interpersonal irrelevance (feeling unseen or invalidated by others), and societal alienation (exclusion from meaningful community participation). Participants’ accounts reveal the multifaceted nature of loneliness, challenging conventional perspectives of personal responsibility and highlighting the diverse social, psychological and contextual aspects of living with chronic illness and loneliness.

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Insignificant, Irrelevant, and Alienated: Types of Loneliness While Navigating Chronic Illness

  • Sophie Lewis,
  • Karen Willis,
  • Lorraine Smith,
  • Maja Lindegaard Moensted,
  • Marika Franklin,
  • Leslie Dubbin,
  • Anne Rogers

摘要

In this chapter, we explore how people with chronic illness understand and experience loneliness in their everyday lives, revealing its complex embodied and relational dimensions. For these individuals, loneliness manifests as personal insignificance (feeling broken or defective), interpersonal irrelevance (feeling unseen or invalidated by others), and societal alienation (exclusion from meaningful community participation). Participants’ accounts reveal the multifaceted nature of loneliness, challenging conventional perspectives of personal responsibility and highlighting the diverse social, psychological and contextual aspects of living with chronic illness and loneliness.