The absence of clear naming and diagnostic recognition lies at the heart of the crisis in care for Post-COVID-19 Neurological Syndrome (PCNS). As explored throughout this book, much of the confusion, stigma, and neglect stems from the inadequate umbrella term “long COVID,” which conceals the distinct neurological disability many patients face. Drawing on the Australian parliamentary report Sick and Tired: Casting a Long Shadow (2023) and lived experiences from over 1000 individuals in Melbourne, this chapter examines how the failure to formally define and legitimize PCNS has directly harmed patients socially, economically, and medically. Many have encountered disbelief, fragmented care, and diagnostic delays that deepen psychological trauma. Harm has been felt by women, culturally and linguistically diverse groups, and young adults. We argue that naming the condition accurately is the first step to building responsive, equitable, and effective care systems. This chapter outlines patient-prioritized needs, including multidisciplinary care, workplace protections, community-based rehabilitation, and inclusive care models co-designed with patients. To restore trust and improve outcomes, the health system must evolve around the lived realities of those it has too often failed to see.