This chapter tells the story of María, a Kichwa Amazonian girl born with Apert syndrome, and explores childbirth and disability from a perspective situated in the territory of Loreto, Ecuador. This life story addresses the tensions between biomedicine and ancestral knowledge, structural exclusion in maternal and child health care, and the fundamental role of midwives as guardians of community knowledge. The narrative reveals how disability, far from being only a medical condition, is socially constructed in contexts of inequality, racism, and institutional neglect. At the same time, it vindicates the loving and creative care that sustains life on the margins of the system. This history challenges the current models of health. It demands to imagine truly intercultural care, where difference is not tolerated as an exception but recognized as a legitimate source of knowledge, care, and justice.

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Reflections on Childbirth and Disability Among the Amazonian Kichwa People of Loreto, Ecuador. The Birth of María

  • Pamela Cevallos Sosa

摘要

This chapter tells the story of María, a Kichwa Amazonian girl born with Apert syndrome, and explores childbirth and disability from a perspective situated in the territory of Loreto, Ecuador. This life story addresses the tensions between biomedicine and ancestral knowledge, structural exclusion in maternal and child health care, and the fundamental role of midwives as guardians of community knowledge. The narrative reveals how disability, far from being only a medical condition, is socially constructed in contexts of inequality, racism, and institutional neglect. At the same time, it vindicates the loving and creative care that sustains life on the margins of the system. This history challenges the current models of health. It demands to imagine truly intercultural care, where difference is not tolerated as an exception but recognized as a legitimate source of knowledge, care, and justice.