The Same… and Different: Parenting Children with Intellectual and Developmental Disabilities
摘要
Although parenting children with intellectual and developmental disabilities has been characterized as “the same and different” from parenting typically developing children, the details of such parenting have rarely been explored. Compared to parenting any child, parents of children with disabilities experience heightened emotions, as well as a need to understand their child’s disability, co-occurring medical conditions, and complex (and changing) disability services and systems. These parents must more often teach others about their child, advocate for specialized services from schools and other service systems, and coordinate an array of services across the lifespan. To help parents accomplish these tasks, disability services have arisen across many countries. These services include parent support groups, information-and-referral services, specialized health clinics, and parent training initiatives. Disability-related services help bring the experience of parenting offspring with intellectual and developmental disabilities closer to the experience of parenting more generally.