Aim: This paper explores the extent to which a rights-based approach was embraced by a large European project, Smart and Healthy Ageing through People Engaging in Supportive Systems (SHAPES project). Method: An independent researcher who had not previously been involved in the project examined project deliverables and undertook interviews with key disability stakeholders in the project. These were analysed in the context of the UN Convention on the Rights of Persons with Disabilities (CRPD) and the Office of the United Nations High Commissioner for Human Rights’ Policy Guidance for Inclusive Research and Innovation. Results: The independent researcher's findings were discussed with team members, identifying positive contributions of the project to advance the right to independent living and the right to health. The analysis also highlighted how the project could have enhanced its rights-based approach and identifies some missed opportunities. Discussion: We present a checklist of 20 recommendations for enacting a rights-based approach to future disability and ageing research and implementation projects. We also call for digital and technology research to demonstrate stronger commitment to accessibility and inclusion, and to ensure participatory approaches in order to produce better and more empowering research.

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Embracing Change Through Ageing Diverse and Equal: Recommendations to Advance the Rights of Older Persons with Disabilities in Research, Implementation Projects

  • Priscille Geiser,
  • Lucia D’Arino,
  • Anastasia Campbell,
  • Delia Ferri,
  • Frankie Picron,
  • Michael Cooke,
  • Malcolm MacLachlan

摘要

Aim: This paper explores the extent to which a rights-based approach was embraced by a large European project, Smart and Healthy Ageing through People Engaging in Supportive Systems (SHAPES project). Method: An independent researcher who had not previously been involved in the project examined project deliverables and undertook interviews with key disability stakeholders in the project. These were analysed in the context of the UN Convention on the Rights of Persons with Disabilities (CRPD) and the Office of the United Nations High Commissioner for Human Rights’ Policy Guidance for Inclusive Research and Innovation. Results: The independent researcher's findings were discussed with team members, identifying positive contributions of the project to advance the right to independent living and the right to health. The analysis also highlighted how the project could have enhanced its rights-based approach and identifies some missed opportunities. Discussion: We present a checklist of 20 recommendations for enacting a rights-based approach to future disability and ageing research and implementation projects. We also call for digital and technology research to demonstrate stronger commitment to accessibility and inclusion, and to ensure participatory approaches in order to produce better and more empowering research.