Disability researchers often encounter bureaucratic measures including costs linked to getting ethical approval from research ethics committees, which makes disability researchers avoid taking the necessary steps to get ethics approval for their research. This creates a possibility for overlooking some of the ethical considerations required, more so in disability research. One of the areas that is problematic in disability research and might require scrutiny by an ethical committee, is the area of lacking inclusion and improper representation of persons with disabilities in research. This creates tensions and undermines relationships between persons with disabilities and researchers. AfriNEAD with its triannual conferences created a platform where persons with disabilities and researchers were able to openly dialogue about these tensions and create solutions. This assisted in heightening the level of awareness about ethical issues in disability research for both disability researchers and practitioners. The two case studies presented in this chapter are a testimony of possibilities that can occur when both disability researchers and persons with disabilities dialogue and address some of these ethical dilemmas.

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AfriNEAD Considerations and Response in Conducting Ethical-Driven Disability Research

  • Gubela Mji

摘要

Disability researchers often encounter bureaucratic measures including costs linked to getting ethical approval from research ethics committees, which makes disability researchers avoid taking the necessary steps to get ethics approval for their research. This creates a possibility for overlooking some of the ethical considerations required, more so in disability research. One of the areas that is problematic in disability research and might require scrutiny by an ethical committee, is the area of lacking inclusion and improper representation of persons with disabilities in research. This creates tensions and undermines relationships between persons with disabilities and researchers. AfriNEAD with its triannual conferences created a platform where persons with disabilities and researchers were able to openly dialogue about these tensions and create solutions. This assisted in heightening the level of awareness about ethical issues in disability research for both disability researchers and practitioners. The two case studies presented in this chapter are a testimony of possibilities that can occur when both disability researchers and persons with disabilities dialogue and address some of these ethical dilemmas.