Dementia, Belonging, and Small Acts of Love
摘要
This chapter begins by outlining the myth that people living with dementiaLiving with dementia are less than human and therefore incapable of love. The myth emerges from a dominant medical paradigmMedical paradigm focused on dementia pathologyDementia pathology, treatment,Dementia treatment and cure for the 50 million people around the world living with dementiaLiving with dementia. In contrast to the medical paradigmMedical paradigm, the human experience of livingHuman experience of living with dementiaLiving with dementia is a much richer story that is gaining recognition. Underpinning stories of the art of living with dementiaLiving with dementia is the importance of loveImportance of love and how it is experienced with an intimate partnerIntimate partner, childrenChildren, grandchildrenGrandchildren, parentsParents, siblingsSiblings, friends,Friends and communityCommunity. This chapter explores the meaning of love in the lives of people with dementia and the shift from romanticized notions of love—to love as caring. It builds on Fromm’s seminal work, The Art of LoveArt of Love, to show how love is a skillSkill that can be developed and must be studied. It presents a framework called Small Acts of LoveActs of Love to show the ways in which reciprocity is sought and love is enacted. The chapter then examines how expressions of loveExpressions of love have become a means for people with dementia to assert their right to full citizenshipFull citizenship. Drawing on Plummer’s Intimate CitizenshipIntimate Citizenship, the chapter explores how narrativesNarratives about love are creating cultural shifts for marginalized people living with dementiaLiving with dementia. LoveLove has become a catalyst for the emergence of a new set of cultural norms that recognize the human rightsHuman rights and human potentialHuman potential of people living with dementiaLiving with dementia.