Most families with a member with disability are equally affected by the challenges that the person with disability faces like stigma, poverty, isolation, and discrimination. The situation of these families is worse in low- and middle-income countries (LMIC) where formal family support is usually minimal or not available at all. Community-Based Inclusive Development (CBID) programs are positioned to address the plight of persons with disabilities and their families in LMICs to ensure that no one is left behind in the development agenda. This chapter uses evidence from literature to interrogate the extent to which CBID programs are addressing the needs of families of persons with disabilities. Importantly, we discuss the role of families, highlighting not only how disability impacts families in poverty, but also how these same families are the pillars of survival for persons with disabilities in contexts where there is limited to no social protection. Recommendations are made for CBID programs to be more intentional in supporting families and ameliorating the challenges they face. We propose among other things, context-relevant livelihood activities for caregivers, promoting peer support and training of family caregivers, ensuring that gender is considered in all the programs, and prioritizing research activities to ensure evidence-based CBID practices.

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Why Families Matter: Caregiving in CBID

  • Callista K. Kahonde,
  • Marubini Christinah Sadiki,
  • Tonderai Shumba

摘要

Most families with a member with disability are equally affected by the challenges that the person with disability faces like stigma, poverty, isolation, and discrimination. The situation of these families is worse in low- and middle-income countries (LMIC) where formal family support is usually minimal or not available at all. Community-Based Inclusive Development (CBID) programs are positioned to address the plight of persons with disabilities and their families in LMICs to ensure that no one is left behind in the development agenda. This chapter uses evidence from literature to interrogate the extent to which CBID programs are addressing the needs of families of persons with disabilities. Importantly, we discuss the role of families, highlighting not only how disability impacts families in poverty, but also how these same families are the pillars of survival for persons with disabilities in contexts where there is limited to no social protection. Recommendations are made for CBID programs to be more intentional in supporting families and ameliorating the challenges they face. We propose among other things, context-relevant livelihood activities for caregivers, promoting peer support and training of family caregivers, ensuring that gender is considered in all the programs, and prioritizing research activities to ensure evidence-based CBID practices.