Patient Support Groups
摘要
People with Inflammatory Bowel Disease (IBD) face significant challenges from diagnosis onwards, needing to understand their condition and manage its impact on their lives. IBD specialist nurses could fill these gaps, yet they are not always available. Peer support, involving individuals with similar experiences, is a valuable resource providing emotional, appraisal, and informational assistance. It can be delivered through various channels like in-person groups, peer coaching, community health workers, telephone support, and online forums. Patient associations, created by individuals living with the condition, offer support, advocacy, and educational resources. These associations help patients adapt to their condition, advocate for rights, and provide tailored information, improving disease management skills, self-efficacy, and mental health. Peer-led programs offer emotional support, practical advice, and a safe environment for discussing fears and everyday problems. However, support groups can present potential issues, such as receiving non-medical advice that should not replace medical care, exposure to negative experiences and inaccurate information, and privacy concerns. Healthcare professionals should inform patients about these potential issues and emphasize the importance of seeking medical advice alongside peer support. Despite the lack of significant evidence on the benefits of peer support on quality of life and psychosocial outcomes for IBD patients, further research is needed to evaluate its net benefits.