Frames are socially shared structures that people use to interpret and meaningfully organize the world around them. These frames shape reasoning, behaviour, and attitudes, and in case of problematizing interpretations, they can contribute to stigma. Therefore, it is essential to recognize the frames that shape people’s meaning-making in stigma-sensitive contexts like dementia. However, due to their implicit nature, individuals might be unaware of the frames they adopt. This lack of awareness can lead to a range of issues throughout the entire research process on design projects related to dementia. For instance, presenting dementia as highly problematic may increase the likelihood of securing funding, but it may also risk reinforcing public stigma. During collaborative projects, unawareness of one’s own and others’ frames can lead to miscommunication and hinder the achievement of common goals. Lastly, the designs themselves or the way results are communicated can reinforce certain frames, further amplifying public and structural stigma. People living with dementia may internalize these frames, thereby increasing self-stigma. Therefore, it is recommended to be aware of frames, including those of people living with dementia, their (informal) caregivers, researchers and the broader society. However, making implicit frames explicit can be challenging. This methodological essay aims to enhance awareness of frames and their influence within dementia design projects. It offers recommendations to promote this awareness while addressing potential challenges and pitfalls.

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How Framing Shapes Dementia Research and Design: Subliminal Influences and Considerations

  • Lisa Bormans,
  • Baldwin Van Gorp

摘要

Frames are socially shared structures that people use to interpret and meaningfully organize the world around them. These frames shape reasoning, behaviour, and attitudes, and in case of problematizing interpretations, they can contribute to stigma. Therefore, it is essential to recognize the frames that shape people’s meaning-making in stigma-sensitive contexts like dementia. However, due to their implicit nature, individuals might be unaware of the frames they adopt. This lack of awareness can lead to a range of issues throughout the entire research process on design projects related to dementia. For instance, presenting dementia as highly problematic may increase the likelihood of securing funding, but it may also risk reinforcing public stigma. During collaborative projects, unawareness of one’s own and others’ frames can lead to miscommunication and hinder the achievement of common goals. Lastly, the designs themselves or the way results are communicated can reinforce certain frames, further amplifying public and structural stigma. People living with dementia may internalize these frames, thereby increasing self-stigma. Therefore, it is recommended to be aware of frames, including those of people living with dementia, their (informal) caregivers, researchers and the broader society. However, making implicit frames explicit can be challenging. This methodological essay aims to enhance awareness of frames and their influence within dementia design projects. It offers recommendations to promote this awareness while addressing potential challenges and pitfalls.