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Purpose <p>Intensive care unit (ICU) patients endure significant stress due to their critical condition, communication difficulties, and the hostile environment. Despite efforts to humanize ICUs, there is a lack of real-time assessment tools for patient well-being and sense of safety. The aim of this project was to develop a scale assessing the feeling of well-being and safety in real time among intubated patients.</p> Methods <p>A systematic review was performed to identify study outcomes evaluating well-being and sense of security. Results were used to organize focus groups and explore patients’ experiences during their ICU stay. The scale was then developed via Delphi methodology by a patient-professional group. The scale was validated through patient interviews for face validity and implementation in a multicentric French cohort. Lastly, the scale was translated in English.</p> Results <p>The systematic review included 137 articles. Focus groups (23 former patients and 5 relatives) highlighted communication challenges and the need for human support. Scale construction resulted in an initial 6-item pragmatic bedside tool. Face validation showed that the constructed scale was acceptable and led to refining the scale by changing item evaluation formats to a 4-stage Likert scale. Cohort validation, comprising 305 scale administrations (84 patients), indicated overall satisfaction and adequate completion rates. Psychometric analysis led to the removal of two items. A simplified 4-item scale (Comfort, Safety, Information, Trust) demonstrated improved reliability and coherence.</p> Conclusion <p>The final scale provides a practical measure of patient well-being in ICUs and is usable in real time at the bedside.</p>

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Well-being and sense of security of intubated patients in intensive care units: a patient co-constructed dedicated scale

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年3月7日

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  • Laetitia Bodet-Contentin,
  • Hélène Lecompte,
  • Adrien Lociciro,
  • Nancy Kentish Barnes,
  • Hélène Messet,
  • Misylias Bouaoud,
  • Justine Cibron,
  • Nicolas Chudeau,
  • François Barbier,
  • Carole Haubertin,
  • Laurent Poiroux,
  • Benedicte Sautenet,
  • Wissam El Hage,
  • Amélie Le Gouge,
  • Julie Leger,
  • Jean-Benoit Hardouin,
  • Stephan Ehrmann

摘要

Purpose

Intensive care unit (ICU) patients endure significant stress due to their critical condition, communication difficulties, and the hostile environment. Despite efforts to humanize ICUs, there is a lack of real-time assessment tools for patient well-being and sense of safety. The aim of this project was to develop a scale assessing the feeling of well-being and safety in real time among intubated patients.

Methods

A systematic review was performed to identify study outcomes evaluating well-being and sense of security. Results were used to organize focus groups and explore patients’ experiences during their ICU stay. The scale was then developed via Delphi methodology by a patient-professional group. The scale was validated through patient interviews for face validity and implementation in a multicentric French cohort. Lastly, the scale was translated in English.

Results

The systematic review included 137 articles. Focus groups (23 former patients and 5 relatives) highlighted communication challenges and the need for human support. Scale construction resulted in an initial 6-item pragmatic bedside tool. Face validation showed that the constructed scale was acceptable and led to refining the scale by changing item evaluation formats to a 4-stage Likert scale. Cohort validation, comprising 305 scale administrations (84 patients), indicated overall satisfaction and adequate completion rates. Psychometric analysis led to the removal of two items. A simplified 4-item scale (Comfort, Safety, Information, Trust) demonstrated improved reliability and coherence.

Conclusion

The final scale provides a practical measure of patient well-being in ICUs and is usable in real time at the bedside.