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Background <p>The experiences of antenatal care (ANC) and childbirth are crucial in identifying and managing conditions such as orofacial clefts, which are often not detected early enough, both prenatally and postnatally. This study explores the ANC and childbirth experiences of parents with children affected by orofacial clefts, aiming to highlight the role of ANC in supporting families and preparing them for long-term care plans.</p> Methods <p>This descriptive observational study used a survey conducted at the <i>Yayasan Pembina Penderita Celah Bibir dan Langit-Langit</i> (YPPCBL), Bandung, between July and August 2024. A purposive sampling method based on the Cochran formula was used to select 49 respondents, with 55 ultimately participating. Data were collected primarily and analyzed descriptively via frequency distribution.</p> Results <p>The study which involved 55 respondents, revealed that most mothers received ANC services (98.2%), although adherence to six recommended ANC visits (20%) and the Ten Treatments (10T) ANC standards (34.5%) were low. Prenatal diagnosis of orofacial clefts occurred in 23.6% of cases, primarily through ultrasound examinations, while the majority (76.4%) were identified postnatally. A small proportion of mothers delivered outside healthcare facilities (7.3%) or without medical assistance (3.6%). Newborn physical examinations were conducted in 81.8% of cases.</p> Conclusions <p>Despite high ANC attendance, there were deficiencies in compliance with ANC K6 visits and the implementation of integrated 10T ANC standards. Prenatal detection of orofacial clefts remains rare, with most cases identified postnatally. While most births occurred in healthcare facilities, palatal clefts often went undetected due to insufficient newborn examinations. These findings underscore the need to enhance ANC services and neonatal examinations to improve early detection and management of orofacial clefts.</p>

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Antenatal care and childbirth experience among parents of children with orofacial clefts: an observational study

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年5月13日

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  • Iffatul Amaaniyah,
  • Anne Agustina Suwargiani,
  • Fidya Meditia Putri

摘要

Background

The experiences of antenatal care (ANC) and childbirth are crucial in identifying and managing conditions such as orofacial clefts, which are often not detected early enough, both prenatally and postnatally. This study explores the ANC and childbirth experiences of parents with children affected by orofacial clefts, aiming to highlight the role of ANC in supporting families and preparing them for long-term care plans.

Methods

This descriptive observational study used a survey conducted at the Yayasan Pembina Penderita Celah Bibir dan Langit-Langit (YPPCBL), Bandung, between July and August 2024. A purposive sampling method based on the Cochran formula was used to select 49 respondents, with 55 ultimately participating. Data were collected primarily and analyzed descriptively via frequency distribution.

Results

The study which involved 55 respondents, revealed that most mothers received ANC services (98.2%), although adherence to six recommended ANC visits (20%) and the Ten Treatments (10T) ANC standards (34.5%) were low. Prenatal diagnosis of orofacial clefts occurred in 23.6% of cases, primarily through ultrasound examinations, while the majority (76.4%) were identified postnatally. A small proportion of mothers delivered outside healthcare facilities (7.3%) or without medical assistance (3.6%). Newborn physical examinations were conducted in 81.8% of cases.

Conclusions

Despite high ANC attendance, there were deficiencies in compliance with ANC K6 visits and the implementation of integrated 10T ANC standards. Prenatal detection of orofacial clefts remains rare, with most cases identified postnatally. While most births occurred in healthcare facilities, palatal clefts often went undetected due to insufficient newborn examinations. These findings underscore the need to enhance ANC services and neonatal examinations to improve early detection and management of orofacial clefts.