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Purpose <p>To explore preferred and experienced roles and their congruence among Chinese cancer patients in decision making with their doctors and families.</p> Methods <p>We used the adapted Control Preferences Scale to identify preferred and experienced roles of patients in decision-making. Multivariate logistic regression analysis was performed to evaluate the effects of cancer types and family involvement on patients’ decision-making roles with doctors.</p> Results <p>A total of 1264 respondents were included. The percentage of respondents preferring patient-led, shared or doctor-led roles in decision-making with doctors was 44.0%, 39.8%, and 16.2%, respectively. The percentage of respondents experiencing patient-led, shared or doctor-led roles in decision-making with doctors was 56.7%, 32.5%, and 10.8%, respectively. The concordance between preference and experience was moderate (κ = 0.41). Most of respondents preferred (77.14%) and experienced (70.89%) shared decision making with their families. Breast cancer patients preferred and experienced passive roles (<i>P</i> &lt; 0.01), and uterine cancer patients reported that their experience was less active than their preference (<i>P</i> &lt; 0.01).</p> Conclusion <p>Most Chinese cancer patients actively or collaboratively participated in decision-making with their doctors. Additionally, the majority of patients preferred and experienced shared decision-making with their families. Patients with uterine cancer indicated an unsatisfied desire to participate in decision-making, while those with breast cancer tended to be more passive.</p>

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Congruence of cancer patients’ desired and achieved decision-making roles between self, doctor and family: a cross-sectional multi-site survey

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  • 发表日期：

    2025年7月1日

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  • Danqi Wang,
  • Siyu Yan,
  • Manru Fan,
  • Hongyang Xue,
  • Linxin Yu,
  • Qiao Huang,
  • Yuexian Shi,
  • Yinghui Jin,
  • Xian-Tao Zeng

摘要

Purpose

To explore preferred and experienced roles and their congruence among Chinese cancer patients in decision making with their doctors and families.

Methods

We used the adapted Control Preferences Scale to identify preferred and experienced roles of patients in decision-making. Multivariate logistic regression analysis was performed to evaluate the effects of cancer types and family involvement on patients’ decision-making roles with doctors.

Results

A total of 1264 respondents were included. The percentage of respondents preferring patient-led, shared or doctor-led roles in decision-making with doctors was 44.0%, 39.8%, and 16.2%, respectively. The percentage of respondents experiencing patient-led, shared or doctor-led roles in decision-making with doctors was 56.7%, 32.5%, and 10.8%, respectively. The concordance between preference and experience was moderate (κ = 0.41). Most of respondents preferred (77.14%) and experienced (70.89%) shared decision making with their families. Breast cancer patients preferred and experienced passive roles (P < 0.01), and uterine cancer patients reported that their experience was less active than their preference (P < 0.01).

Conclusion

Most Chinese cancer patients actively or collaboratively participated in decision-making with their doctors. Additionally, the majority of patients preferred and experienced shared decision-making with their families. Patients with uterine cancer indicated an unsatisfied desire to participate in decision-making, while those with breast cancer tended to be more passive.