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Background <p>There is an extensive and growing body of knowledge regarding disease-modifying treatment (DMT) in multiple sclerosis (MS) regarding their effects, impact on functioning and potential side-effects. Few studies have, however, investigated the patients’ perspectives regarding their experiences of DMT in daily life.</p> Aim <p>To investigate and describe the experience of DMT in the daily lives of patients with MS.</p> Methods <p>A qualitative design was applied using semi-structured interviews with eight patients with MS on different types of DMT. The interviews were analyzed using qualitative content analysis.</p> Results <p>Three themes emerged from the analysis; Fulfilled expectations in the light of previous treatments, Continuous need for treatment and side effect management, and Need for personalized feedback from the MS care team.</p> Conclusion <p>The patients’ described experiences and hopes for personalized treatment plans, procedures, and feedback on DMT outcome implicate the need for further development of person-centred interventions. Development of such care interventions should consider the patients’ perspectives on e.g., treatment preferences and procedures, social support, and the professionalism and expert-knowledge of MS care team professionals. The knowledge derived from this study may also inform the development of patient-reported experience- and outcome measures regarding daily life with DMT in MS.</p>

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Experiences of disease-modifying treatments in patients with multiple sclerosis – a qualitative study

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年12月10日

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  • Kristina Gottberg,
  • Marie Kierkegaard,
  • Birgitta Jakobsson Larsson,
  • Charlotte Ytterberg

摘要

Background

There is an extensive and growing body of knowledge regarding disease-modifying treatment (DMT) in multiple sclerosis (MS) regarding their effects, impact on functioning and potential side-effects. Few studies have, however, investigated the patients’ perspectives regarding their experiences of DMT in daily life.

Aim

To investigate and describe the experience of DMT in the daily lives of patients with MS.

Methods

A qualitative design was applied using semi-structured interviews with eight patients with MS on different types of DMT. The interviews were analyzed using qualitative content analysis.

Results

Three themes emerged from the analysis; Fulfilled expectations in the light of previous treatments, Continuous need for treatment and side effect management, and Need for personalized feedback from the MS care team.

Conclusion

The patients’ described experiences and hopes for personalized treatment plans, procedures, and feedback on DMT outcome implicate the need for further development of person-centred interventions. Development of such care interventions should consider the patients’ perspectives on e.g., treatment preferences and procedures, social support, and the professionalism and expert-knowledge of MS care team professionals. The knowledge derived from this study may also inform the development of patient-reported experience- and outcome measures regarding daily life with DMT in MS.