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<p>Digital health tools generate vast sensitive data not only in clinic but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. We present a novel early-stage conceptual framework, reviewing technologies like blockchain, self-sovereign identity, and de-identified tokens for integration into a consent management system to enable tracking of consent and data utilization. This balances data access and privacy to encourage data sharing and improve healthcare.</p>

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Enabling secure and self determined health data sharing and consent management

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2025年8月30日

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  • Cindy Welzel,
  • Max Ostermann,
  • Hannah Louise Smith,
  • Timo Minssen,
  • Toralf Kirsten,
  • Stephen Gilbert

摘要

Digital health tools generate vast sensitive data not only in clinic but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. We present a novel early-stage conceptual framework, reviewing technologies like blockchain, self-sovereign identity, and de-identified tokens for integration into a consent management system to enable tracking of consent and data utilization. This balances data access and privacy to encourage data sharing and improve healthcare.