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<p>Congenital Heart Disease (CHD) is a structural or functional abnormality of the heart that is present from birth. Children with CHD need specialized care, treatment, and ongoing follow-up for various common conditions, which can place significant demands on their caregivers. So, caregivers have a higher risk of experiencing emotional distress, anxiety, social isolation, feelings of hopelessness, and even suicidal ideation. It is influenced by culture, rules, financial, and the system of health and care services. This study aimed to analyze the burden of care and associated factors among caregivers of children with congenital heart disease at Tertiary Hospitals in Addis Ababa, Ethiopia, 2024. This cross-sectional study included 301 caregivers of children with congenital heart disease recruited from the Children’s Medical Centers at Tertiary Hospitals in Addis Ababa. Face-to-face interviews with caregivers had been done. The demographic and disease-related data were collected. The Zarit Burden Interview (ZBI) was administered to assess disease burden. It was conducted from October 2023 to January 2024. About 85% of caregivers had a mild-to-severe burden. The findings revealed that caregivers in the age group of above 30 years had a significantly milder-to moderate burden of care compared to caregivers below 30 years (<i>p</i> = 0.012). Those with higher monthly incomes were 54% less likely to experience a mild to moderate burden, 66% less likely to experience a moderate to severe burden, and 81% less likely to experience a severe burden compared to those with little/no/ burden. Caregivers with rural residency were 52% more likely to experience a mild to moderate burden, 71% more likely to experience a moderate to severe burden, and 85% more likely to experience a severe burden compared to those with no/little burden. Caregivers with higher or college education had 77% lower likelihood of experiencing a moderate to severe burden and 98.8% lower likelihood of experiencing a severe burden compared to those with little or no education. Caregiver burden among caregivers of children with congenital heart disease is significantly high in the study area. Caregivers’ age, educational status, residency, and monthly income were associated with caregiver burden.</p>

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Disease burden and associated factors among caregivers of children with congenital heart disease at tertiary hospitals in Addis Ababa, Ethiopia

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年3月20日

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  • Getenet Awoke,
  • Melkamu Tilahun,
  • Temesgen Tsega,
  • Bayou Tilahun Assaye

摘要

Congenital Heart Disease (CHD) is a structural or functional abnormality of the heart that is present from birth. Children with CHD need specialized care, treatment, and ongoing follow-up for various common conditions, which can place significant demands on their caregivers. So, caregivers have a higher risk of experiencing emotional distress, anxiety, social isolation, feelings of hopelessness, and even suicidal ideation. It is influenced by culture, rules, financial, and the system of health and care services. This study aimed to analyze the burden of care and associated factors among caregivers of children with congenital heart disease at Tertiary Hospitals in Addis Ababa, Ethiopia, 2024. This cross-sectional study included 301 caregivers of children with congenital heart disease recruited from the Children’s Medical Centers at Tertiary Hospitals in Addis Ababa. Face-to-face interviews with caregivers had been done. The demographic and disease-related data were collected. The Zarit Burden Interview (ZBI) was administered to assess disease burden. It was conducted from October 2023 to January 2024. About 85% of caregivers had a mild-to-severe burden. The findings revealed that caregivers in the age group of above 30 years had a significantly milder-to moderate burden of care compared to caregivers below 30 years (p = 0.012). Those with higher monthly incomes were 54% less likely to experience a mild to moderate burden, 66% less likely to experience a moderate to severe burden, and 81% less likely to experience a severe burden compared to those with little/no/ burden. Caregivers with rural residency were 52% more likely to experience a mild to moderate burden, 71% more likely to experience a moderate to severe burden, and 85% more likely to experience a severe burden compared to those with no/little burden. Caregivers with higher or college education had 77% lower likelihood of experiencing a moderate to severe burden and 98.8% lower likelihood of experiencing a severe burden compared to those with little or no education. Caregiver burden among caregivers of children with congenital heart disease is significantly high in the study area. Caregivers’ age, educational status, residency, and monthly income were associated with caregiver burden.