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<p>Genetics in medicine is rapidly becoming integral to European healthcare, yet access to high-quality genetic counseling remains inconsistent. Genetic counseling empowers patients to make informed decisions about genetic testing, improves clinical management, and mitigates psychosocial harm. Despite growing demand, the genetic counselor profession lacks legal recognition, standardized education, and harmonized regulation across European Union (EU) Member States. Current fragmentation, which is evident in separate national laws and variable practices, poses systemic risks, including inequitable care and credentialing barriers. This paper argues that harmonization is essential to ensure ethical, safe, and effective genetic services. We recommend EU-wide legal recognition of genetic counselors, standardized education through EBMG-accredited programs, and investment in workforce development and education. Coordinated action can safeguard individuals’ rights, support professional mobility, and enable responsible integration of genomics into healthcare.</p>

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Harmonizing the genetic counselor profession in Europe

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年5月5日

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  • Rebecka Pestoff,
  • Christophe Cordier,
  • Donna Darmanin,
  • Katrin Õunap,
  • Christi J. van Asperen

摘要

Genetics in medicine is rapidly becoming integral to European healthcare, yet access to high-quality genetic counseling remains inconsistent. Genetic counseling empowers patients to make informed decisions about genetic testing, improves clinical management, and mitigates psychosocial harm. Despite growing demand, the genetic counselor profession lacks legal recognition, standardized education, and harmonized regulation across European Union (EU) Member States. Current fragmentation, which is evident in separate national laws and variable practices, poses systemic risks, including inequitable care and credentialing barriers. This paper argues that harmonization is essential to ensure ethical, safe, and effective genetic services. We recommend EU-wide legal recognition of genetic counselors, standardized education through EBMG-accredited programs, and investment in workforce development and education. Coordinated action can safeguard individuals’ rights, support professional mobility, and enable responsible integration of genomics into healthcare.