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Objective <p>Describe the well-being of parents of infants during intensive care unit (ICU) admission through 6 months after discharge.</p> Study design <p>Cohort study of infants with neurological conditions admitted to the ICU between 2018 and 2020 whose parents completed surveys at enrollment, discharge, and 6 months after discharge.</p> Results <p>40 mothers and 21 fathers of 40 infants were enrolled. Abnormal anxiety scores were most common at enrollment for mothers (58%), and at 6 months post discharge for fathers (71%). Abnormal sleep was most common at enrollment for mothers (75%), and at discharge for fathers (73%).</p> <p>Post traumatic stress disorder (PTSD) scores were abnormal for 47% of mothers and 33% of fathers.</p> Conclusion <p>Parents of infants with neurologic conditions are at risk of poor well-being, including symptoms of anxiety, PTSD, and impaired physical function. Further studies assessing the optimal timing for interventions are needed to improve parental well-being.</p>

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Well-being in parents of infants with neurological conditions: from birth to 6 months after discharge

  • 期刊论文

  • 发表日期：

    2026年3月30日

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  • Denise Helena Moreira,
  • Monica E. Lemmon,
  • Rachel G. Greenberg,
  • Sharla Rent,
  • Samia Aleem

摘要

Objective

Describe the well-being of parents of infants during intensive care unit (ICU) admission through 6 months after discharge.

Study design

Cohort study of infants with neurological conditions admitted to the ICU between 2018 and 2020 whose parents completed surveys at enrollment, discharge, and 6 months after discharge.

Results

40 mothers and 21 fathers of 40 infants were enrolled. Abnormal anxiety scores were most common at enrollment for mothers (58%), and at 6 months post discharge for fathers (71%). Abnormal sleep was most common at enrollment for mothers (75%), and at discharge for fathers (73%).

Post traumatic stress disorder (PTSD) scores were abnormal for 47% of mothers and 33% of fathers.

Conclusion

Parents of infants with neurologic conditions are at risk of poor well-being, including symptoms of anxiety, PTSD, and impaired physical function. Further studies assessing the optimal timing for interventions are needed to improve parental well-being.