Development of an interdisciplinary tool to assess severe BPD phase of illness and application evaluating impact of tracheostomy
摘要
Infants with severe bronchopulmonary dysplasia (sBPD) progress through phases of illness. We created a longitudinal interdisciplinary assessment tool to track infant progress, then utilized it to evaluate the impact of tracheostomy.
MethodsAn iterative interview process with interprofessional experts was used to develop the tool for infants with grade 2/3 BPD. Qualitative coding determined common themes, which interviewees ranked by importance to develop the tool. We then retrospectively compared pairwise scores before and after tracheostomy placement.
ResultsThe assessment tool has twelve categories with items corresponding to four phases of illness. Total scores improved post tracheostomy, driven by significant improvements in systemic steroid, sedation, FiO2, weight, tolerance of cares, and developmental participation.
ConclusionsWe present a user-friendly interdisciplinary scoring tool for sBPD to help providers and families align care goals and track longitudinal progress. Tracheostomy placement was associated with a change to less acute phases of sBPD.