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<p>Patient-reported outcome measures (PROMs) are widely implemented in Wales to achieve Value-Based Healthcare (VBHC). All patient-facing information in Wales must be available bilingually; therefore, Welsh-language PROM translation is necessary. Conceptually equivalent and patient-friendly translations of PROMs are essential to ensure that the data they collect are equivalent to that collected via their corresponding original language versions. As a result, the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) have developed best practice principles for PROM translations. This article reflects on a body of work undertaken over 8 years between 2016 and 2024 to translate a series of PROMs from English to Welsh by attempting to follow these principles. While effective in most areas, they do not provide guidance on reaching an appropriate register in languages with more than one register, dealing with multiple dialects, or how to recruit enough participants for cognitive debriefing when there are limited numbers of native speakers. Lessons have been learned while trying to manage these challenges in Wales, and recommendations for future practice are provided.</p>

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Strategies to Translate PROMs to Linguistically Diverse and Lesser-Spoken Languages: Lessons from Wales

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年10月19日

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  • Robert I. Palmer,
  • Hawys Waddington,
  • Kathleen Withers

摘要

Patient-reported outcome measures (PROMs) are widely implemented in Wales to achieve Value-Based Healthcare (VBHC). All patient-facing information in Wales must be available bilingually; therefore, Welsh-language PROM translation is necessary. Conceptually equivalent and patient-friendly translations of PROMs are essential to ensure that the data they collect are equivalent to that collected via their corresponding original language versions. As a result, the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) have developed best practice principles for PROM translations. This article reflects on a body of work undertaken over 8 years between 2016 and 2024 to translate a series of PROMs from English to Welsh by attempting to follow these principles. While effective in most areas, they do not provide guidance on reaching an appropriate register in languages with more than one register, dealing with multiple dialects, or how to recruit enough participants for cognitive debriefing when there are limited numbers of native speakers. Lessons have been learned while trying to manage these challenges in Wales, and recommendations for future practice are provided.