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Background <p>Deep Brain Stimulation (DBS) is an established treatment for advanced Parkinson’s disease (PD), yet registry-based data from developing countries remain limited. This study reports the establishment and feasibility of the Iranian Deep Brain Stimulation Registry for Parkinson’s Disease (IDBSR-PD).</p> Methods <p>We conducted a single-center feasibility study at the Research Center for Neuromodulation and Pain, including all PD patients undergoing DBS implantation since 2014. Primary feasibility outcomes included patient enrollment coverage, follow-up adherence, data completeness, multidisciplinary implementation, and the sustainability of technical infrastructure. Secondary outcomes included descriptive patient characteristics. Only descriptive statistics were performed; no hypothesis testing or longitudinal outcome analyses were conducted.</p> Results <p>A total of 208 patients were enrolled (65.4% male; mean age 58.4 ± 10.2 years). Enrollment increased progressively over time, peaking in 2024 (<i>n</i> = 41). Patients were referred from multiple provinces across Iran. Data validation mechanisms and regular surveillance ensured acceptable data completeness.</p> Conclusions <p>The IDBSR-PD demonstrates the feasibility and sustainability of a web-based DBS registry in a developing country. These findings confirm the viability of structured data collection and provide a foundation for future multicenter and longitudinal outcome research.</p>

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Iranian Deep Brain Stimulation Registry for Parkinson’s Disease (IDBSR-PD): establishment and feasibility study

  • 期刊论文

  • 发表日期：

    2026年6月23日

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  • Saeed Abdollahifard,
  • Sara Maghsoodzadeh,
  • Raziyeh Rezaei,
  • Amirhossein Najibi,
  • Afshin Heidarian,
  • Malihe Mehdinejad Haghighi,
  • Fatemeh Khademi,
  • Sina Sabet,
  • Saba Torabzade-Tari,
  • Aliasghar Karimi,
  • Ali Razmkon,
  • Nematollah Jaafari

摘要

Background

Deep Brain Stimulation (DBS) is an established treatment for advanced Parkinson’s disease (PD), yet registry-based data from developing countries remain limited. This study reports the establishment and feasibility of the Iranian Deep Brain Stimulation Registry for Parkinson’s Disease (IDBSR-PD).

Methods

We conducted a single-center feasibility study at the Research Center for Neuromodulation and Pain, including all PD patients undergoing DBS implantation since 2014. Primary feasibility outcomes included patient enrollment coverage, follow-up adherence, data completeness, multidisciplinary implementation, and the sustainability of technical infrastructure. Secondary outcomes included descriptive patient characteristics. Only descriptive statistics were performed; no hypothesis testing or longitudinal outcome analyses were conducted.

Results

A total of 208 patients were enrolled (65.4% male; mean age 58.4 ± 10.2 years). Enrollment increased progressively over time, peaking in 2024 (n = 41). Patients were referred from multiple provinces across Iran. Data validation mechanisms and regular surveillance ensured acceptable data completeness.

Conclusions

The IDBSR-PD demonstrates the feasibility and sustainability of a web-based DBS registry in a developing country. These findings confirm the viability of structured data collection and provide a foundation for future multicenter and longitudinal outcome research.