Partizipative Entwicklung einer digitalen Ergotherapie gegen Fatigue – ein Werkstattbericht
摘要
Fatigue is a frequent and highly burdensome symptom in inflammatory rheumatic and postinfectious conditions. Despite guideline-based recommendations, access to nonpharmacological support remains limited in routine care. The aim of the DiEgO project (Digital Occupational Therapy for Fatigue and Cognitive Impairment) is to transfer core elements of the evidence-based intervention ErgoLoCo (a long COVID occupational therapy program) into a web-based application using a participatory approach.
MethodsA participatory codesign study involving people with fatigue, practicing occupational therapists, and academic researchers was implemented. In six research workshops (two groups), prioritized content from ErgoLoCo was digitally adapted through three iterative development and refinement cycles. The development process was designed to be fatigue-sensitive, incorporating scheduled breaks, reduced information density, and flexible modes of participation.
ResultsThe resulting prototype (prior to external practice-based evaluation) comprises 13 modules, including two informational units, ten occupational therapy modules, and one optional movement and relaxation module. Core features integrated throughout the intervention include self-monitoring of energy resources, structured break management, and differentiated consideration of postexertional malaise (PEM). The modular design allows for location- and time-independent use to support individual self-management.
ConclusionThe participatory research workshops enabled a fatigue-sensitive digital translation of occupational therapy content. DiEgO highlights the potential of scalable digital occupational therapy to address gaps in the care for people with fatigue, including rheumatological contexts. An external evaluation of usability and acceptability in clinical practice settings is currently underway.