<p>This study examines the ethical implications of deep brain stimulation (DBS) for Parkinson's disease (PD) through a systematic review and qualitative synthesis of the literature. While DBS significantly improves motor function and quality of life for many patients, individual experiences vary widely, often involving psychosocial challenges that can mitigate the benefits of motor improvements. Psychosocial changes, including shifts in mood, self-perception, and social relationships, are central to these experiences. The findings emphasize the critical need for comprehensive pre-surgical education and informed consent processes to ensure patients and caregivers fully understand both the potential benefits and psychosocial impacts of DBS. Moreover, the variability in patient experiences suggests that existing clinical guidelines may require revision to incorporate routine psychological assessments and standardized follow-up care. Limitations of this study, such as methodological concerns in the included research, point to the need for further longitudinal studies and rigorous adherence to quality standards to comprehensively capture the long-term ethical implications of DBS. By examining these psychosocial and ethical dimensions, this review contributes valuable insights to inform clinical practices and promote patient-centered approaches, ensuring that DBS is applied in a manner that prioritizes patient well-being and effectively addresses ethical concerns.</p>

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Living With Deep Brain Stimulation for Parkinson’s Disease: a Systematic Review and Qualitative Synthesis of Patient Experiences

  • Juliana Corrales Tauil,
  • Marcos Alonso,
  • Maurício Marchiori,
  • Amer Cavalheiro Hamdan

摘要

This study examines the ethical implications of deep brain stimulation (DBS) for Parkinson's disease (PD) through a systematic review and qualitative synthesis of the literature. While DBS significantly improves motor function and quality of life for many patients, individual experiences vary widely, often involving psychosocial challenges that can mitigate the benefits of motor improvements. Psychosocial changes, including shifts in mood, self-perception, and social relationships, are central to these experiences. The findings emphasize the critical need for comprehensive pre-surgical education and informed consent processes to ensure patients and caregivers fully understand both the potential benefits and psychosocial impacts of DBS. Moreover, the variability in patient experiences suggests that existing clinical guidelines may require revision to incorporate routine psychological assessments and standardized follow-up care. Limitations of this study, such as methodological concerns in the included research, point to the need for further longitudinal studies and rigorous adherence to quality standards to comprehensively capture the long-term ethical implications of DBS. By examining these psychosocial and ethical dimensions, this review contributes valuable insights to inform clinical practices and promote patient-centered approaches, ensuring that DBS is applied in a manner that prioritizes patient well-being and effectively addresses ethical concerns.