“In Sickness and in Health”: A Comprehensive Exploration of the Unacknowledged Strain and Resilience of Older Adults Caring for Their Older Spouses With Disability in the Context of Shared Aging Trajectories in Kerala
摘要
Population ageing has significantly increased the number of older adults who provide care to their spouses with disabilities. While caregiving in later life is often discussed in relation to adult children, the experiences of older spousal caregivers remain under-examined, particularly in the Indian context. This study explores the experiences of older adults who care for their spouses with disabilities in Kerala, focusing on the emotional strain, physical challenges, and resilience associated with spousal caregiving. The study employed a qualitative exploratory design using in-depth semi-structured interviews with 30 older spousal caregivers across the fourteen districts of Kerala. Participants were selected through purposive sampling with the assistance of community health workers who helped identify households where older adults were providing care to spouses with disabilities. The interview data were analysed using thematic analysis following the framework of Virginia Braun and Victoria Clarke. The findings reveal multiple dimensions of caregiving experiences, including emotional distress, physical exhaustion, financial strain, and social isolation. Participants described feelings of loneliness, anxiety about the future, and challenges associated with managing caregiving responsibilities while experiencing their own age-related health limitations. At the same time, caregivers also demonstrated resilience through coping strategies such as spirituality, acceptance, and a strong sense of marital commitment. The findings highlight the need for greater recognition of older spousal caregivers within ageing and caregiving policies. Strengthening community-based support systems, caregiver counselling services, and accessible healthcare resources may help address the challenges faced by older adults who provide care for their spouses with disabilities.