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Purpose <p>To define the role and scope of Stroke Support Organizations (SSOs) in the stroke care pathway and identify strategies to optimize their engagement across the continuum of care.</p> Methods <p>A review following Cochrane protocols searched five databases (MEDLINE, EMBASE, CINAHL, PubMed, Cochrane) for 2017–2024 literature, supplemented by author expertise.</p> Results <p>SSOs function across the stroke care pathway, from emergency recognition training to long-term recovery support. SSOs bridge gaps between formal healthcare and community-based care, particularly when clinical rehabilitation services end. Promising integration models include healthcare-community partnerships, coordination frameworks, and service delivery adaptations. Barriers include funding, unclear role definitions, and limited referral pathways. Active collaboration between healthcare institutions and SSOs was a noted facilitator for success.</p> Summary <p>SSOs offer continuity when formal services are limited. Neurologists can optimize patient outcomes by understanding SSO capabilities, establishing formal referral pathways, and integrating community-based support into care planning.</p>

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Beyond the Clinic: The Impact of Stroke Support Organizations on Patient Experience and Outcomes

  • 期刊论文

  • 发表日期：

    2026年3月18日

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  • M. L. A. Nelson,
  • H. Singh,
  • J. Leighton,
  • S. Belson,
  • M. Wu,
  • P. Lindsay,
  • T. T. Moni,
  • B. Obviagele

摘要

Purpose

To define the role and scope of Stroke Support Organizations (SSOs) in the stroke care pathway and identify strategies to optimize their engagement across the continuum of care.

Methods

A review following Cochrane protocols searched five databases (MEDLINE, EMBASE, CINAHL, PubMed, Cochrane) for 2017–2024 literature, supplemented by author expertise.

Results

SSOs function across the stroke care pathway, from emergency recognition training to long-term recovery support. SSOs bridge gaps between formal healthcare and community-based care, particularly when clinical rehabilitation services end. Promising integration models include healthcare-community partnerships, coordination frameworks, and service delivery adaptations. Barriers include funding, unclear role definitions, and limited referral pathways. Active collaboration between healthcare institutions and SSOs was a noted facilitator for success.

Summary

SSOs offer continuity when formal services are limited. Neurologists can optimize patient outcomes by understanding SSO capabilities, establishing formal referral pathways, and integrating community-based support into care planning.