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Background <p>Participatory research or patient and public involvement refers to the process of actively involving people with lived experience of a&#xa0;condition into the research process to improve its relevance and impact. One challenge is to establish sustainable structures to facilitate the participation of those affected, particularly previously underrepresented patient groups (e.g., individuals with dementia). As part of the establishment of a&#xa0;stakeholder advisory board, we conducted a&#xa0;quantitative survey on the topic of participatory research.</p> Materials and methods <p>From January to March 2023, we conducted a&#xa0;survey with 266 participants from the Senior Academy Rostock, either with paper and pencil or online. We collected data on participants’ previous knowledge and attitudes toward participatory research, as well as their willingness to participate and the requirements for doing so. The data analysis included descriptive statistics and bivariate analyses.</p> Results <p>Of the 266 participants from the Senior Academy, we analyzed 92&#xa0;questionnaires (response rate = 35%). Only 9% of respondents had prior experience with participatory research. However, 82% found the topic to be meaningful, and 59% expressed interest in contributing to research. Almost all respondents expressed their willingness to provide support for at least one hour per week, and they expected to receive compensation at or below the legal minimum wage for their efforts.</p> Conclusion <p>Elderly individuals from academic backgrounds were willing to participate in scientific research projects. Participants can be involved in dementia research under real-world conditions.</p>

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Partizipative Gesundheitsforschung im Alter – was denken Seniorinnen und Senioren darüber?

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年8月19日

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  • M. Daum,
  • E. Drewelow,
  • A. Seifert,
  • K. Gerullis,
  • B. Völlm,
  • I. Kilimann,
  • S. Teipel,
  • O. Biernetzky

摘要

Background

Participatory research or patient and public involvement refers to the process of actively involving people with lived experience of a condition into the research process to improve its relevance and impact. One challenge is to establish sustainable structures to facilitate the participation of those affected, particularly previously underrepresented patient groups (e.g., individuals with dementia). As part of the establishment of a stakeholder advisory board, we conducted a quantitative survey on the topic of participatory research.

Materials and methods

From January to March 2023, we conducted a survey with 266 participants from the Senior Academy Rostock, either with paper and pencil or online. We collected data on participants’ previous knowledge and attitudes toward participatory research, as well as their willingness to participate and the requirements for doing so. The data analysis included descriptive statistics and bivariate analyses.

Results

Of the 266 participants from the Senior Academy, we analyzed 92 questionnaires (response rate = 35%). Only 9% of respondents had prior experience with participatory research. However, 82% found the topic to be meaningful, and 59% expressed interest in contributing to research. Almost all respondents expressed their willingness to provide support for at least one hour per week, and they expected to receive compensation at or below the legal minimum wage for their efforts.

Conclusion

Elderly individuals from academic backgrounds were willing to participate in scientific research projects. Participants can be involved in dementia research under real-world conditions.