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Background <p>Siblings of children with chronic illnesses or disabilities often experience psychosocial burdens that can affect their quality of life (QoL). This study examines the agreement between self-reports and parent-reports and analyzes potential factors influencing these discrepancies.</p> Methods <p>The study recruited 67&#xa0;parent–child dyads. QoL was measured using the KIDSCREEN-10 questionnaire, supplemented with additional questionnaires on family burden and parent–child relationships. Statistical methods, including t‑tests, intraclass correlations (ICC), and multiple regression analyses, were employed to analyze differences, agreements, and determinants of discrepancies.</p> Results <p>The children rated their QoL systematically higher than their parents did (effect size Cohens d = 0.28). Agreement regarding QoL (ICC = 0.37) was low; there were significant discrepancies in assessments of QoL in approximately one-third of parent–child dyads. Potential predictors such as family strain or parent–child relationship had no significant influence on the discrepancies.</p> Conclusions <p>The findings highlight the necessity of a&#xa0;multiperspective approach to assess QoL in research and practice.</p>

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Lebensqualität von Geschwistern von Kindern mit chronischen Erkrankungen: Übereinstimmungen von Selbst- und Elternbericht

  • 期刊论文

  • 发表日期：

    2025年7月1日

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  • C. Engelhardt-Lohrke,
  • L. Schlüter,
  • L. K. Kulisch,
  • M. Förderer,
  • M. Jagla-Franke

摘要

Background

Siblings of children with chronic illnesses or disabilities often experience psychosocial burdens that can affect their quality of life (QoL). This study examines the agreement between self-reports and parent-reports and analyzes potential factors influencing these discrepancies.

Methods

The study recruited 67 parent–child dyads. QoL was measured using the KIDSCREEN-10 questionnaire, supplemented with additional questionnaires on family burden and parent–child relationships. Statistical methods, including t‑tests, intraclass correlations (ICC), and multiple regression analyses, were employed to analyze differences, agreements, and determinants of discrepancies.

Results

The children rated their QoL systematically higher than their parents did (effect size Cohens d = 0.28). Agreement regarding QoL (ICC = 0.37) was low; there were significant discrepancies in assessments of QoL in approximately one-third of parent–child dyads. Potential predictors such as family strain or parent–child relationship had no significant influence on the discrepancies.

Conclusions

The findings highlight the necessity of a multiperspective approach to assess QoL in research and practice.