Dementia Diagnosis in Postapartheid South Africa: Providers’ Perspectives in Ethnographic Context
摘要
This article situates perspectives of South African social service and health care providers on older adults who live with dementia and Alzheimer’s disease in ethnographic context. A review of findings from multi-year field research on long-term care and service provision for older adults in peri-urban Mpumalanga shows: racial disparities in accessing formal dementia diagnoses; aggression, forgetfulness, and wandering as the most reported symptoms of presumed dementia; and provider-reported ethno-racial differences in families’ diagnostic- and care-seeking practices. Findings corroborate evaluative research showing structural barriers to diagnosis and care. Hansen’s concept of diagnostic apartheid is expanded to explain how making sense of dementia is a sometimes partial, unequal, and racializing process; how older adulthood is reproduced as a structurally vulnerable position; and how historical consciousness of violence informs understandings and non-integration of neuropsychiatric and other models of dementia.