<p>The current use of identifiers to describe immigrant patients in Electronic Health Records (EHRs) is poorly described and lacks standardization, but nevertheless has broad implications related to clinical care and research of this population. We conducted interviews with stakeholders to discern strong identifiers for use to identify patients who have immigrated to the United States (U.S.). Language, country of origin, time in the U.S., and race/ethnicity were identified as effective, ethical, and acceptable for use. Limitations of each of these identifiers were noted, highlighting the need to use multiple identifiers in combination when describing patients in EHRs. The processes used to collect these identifiers in clinical settings and the ethical implications of using these identifiers must also be carefully considered. Our results highlight the need for standards related to documentation of immigrant patients in EHRs. Further research is also needed to validate the identifiers we have outlined, discern additional identifiers that are useful and acceptable in specific clinical and research contexts, and explore how strong identifiers can be operationalized in EHRs for clinical, research, and community engagement purposes.</p>

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Characterizing Identifiers for Immigrant Populations in Electronic Health Records

  • Preethi Ravi,
  • Margaret Smith,
  • Sabrina Bogović,
  • Camille Lin,
  • Anna Yaffee,
  • Matthew Dudgeon,
  • Amy Zeidan

摘要

The current use of identifiers to describe immigrant patients in Electronic Health Records (EHRs) is poorly described and lacks standardization, but nevertheless has broad implications related to clinical care and research of this population. We conducted interviews with stakeholders to discern strong identifiers for use to identify patients who have immigrated to the United States (U.S.). Language, country of origin, time in the U.S., and race/ethnicity were identified as effective, ethical, and acceptable for use. Limitations of each of these identifiers were noted, highlighting the need to use multiple identifiers in combination when describing patients in EHRs. The processes used to collect these identifiers in clinical settings and the ethical implications of using these identifiers must also be carefully considered. Our results highlight the need for standards related to documentation of immigrant patients in EHRs. Further research is also needed to validate the identifiers we have outlined, discern additional identifiers that are useful and acceptable in specific clinical and research contexts, and explore how strong identifiers can be operationalized in EHRs for clinical, research, and community engagement purposes.