<p>Cerebral palsy (CP) profoundly affects both children and their families, often resulting in parental stress, emotional strain, and challenges in maintaining family well-being. Good Start is a family-centered early intervention designed for families of children aged six months to four years with CP, with the goal of enhancing parental competence, empowerment, and quality of life. Family-centered interventions, such as Good Start, aim to support parents by helping them integrate training into daily routines and fostering overall well-being. This study evaluates the Good Start program as a structured approach to addressing these challenges. A qualitative design was used, incorporating in-depth interviews with 19 parents at two time points - shortly after program completion and six months later - supplemented by observational data. Parents reported increased confidence in their caregiving role and a greater ability to incorporate therapeutic activities into everyday life. Psychological support and peer networking opportunities were highly valued, though maintaining connections post-program was challenging. Findings indicate that family-centered approaches contribute to parental empowerment and improved family dynamics. Good Start promotes parental competence and well-being by providing structured guidance, peer support, and strategies for incorporating therapy into daily life. Further research is needed to examine its long-term impact and broader applicability.</p>

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Parental Experiences of Self-Efficacy, Empowerment, and Quality of Life: A Qualitative Evaluation of a 4-Day Intensive Early Intervention Program for Families of Children with Cerebral Palsy

  • Thomas Skovgaard,
  • Charlotte Boslev Præst,
  • Lars Breum Christiansen,
  • Danielle Louise Nørager Johansen,
  • Camilla Marie Larsen

摘要

Cerebral palsy (CP) profoundly affects both children and their families, often resulting in parental stress, emotional strain, and challenges in maintaining family well-being. Good Start is a family-centered early intervention designed for families of children aged six months to four years with CP, with the goal of enhancing parental competence, empowerment, and quality of life. Family-centered interventions, such as Good Start, aim to support parents by helping them integrate training into daily routines and fostering overall well-being. This study evaluates the Good Start program as a structured approach to addressing these challenges. A qualitative design was used, incorporating in-depth interviews with 19 parents at two time points - shortly after program completion and six months later - supplemented by observational data. Parents reported increased confidence in their caregiving role and a greater ability to incorporate therapeutic activities into everyday life. Psychological support and peer networking opportunities were highly valued, though maintaining connections post-program was challenging. Findings indicate that family-centered approaches contribute to parental empowerment and improved family dynamics. Good Start promotes parental competence and well-being by providing structured guidance, peer support, and strategies for incorporating therapy into daily life. Further research is needed to examine its long-term impact and broader applicability.