<p>Families of young children with disabilities or suspected disabilities often face a complex service landscape. In Flanders, little is known about the actual trajectories these families follow. This study surveyed 334 parents and used cluster analysis to identify service use patterns. Four clusters emerged: (1) families primarily supported by universal services, (2) families with limited service access, (3) families combining universal and specialized services, and (4) families primarily relying on specialized services. Families in the first two clusters had significantly lower educational levels than families in the last two. Genetic conditions and complex medical needs were more common in the cluster with specialized support (4) and less in the cluster with limited service access (2). It is important to ensure low-threshold access to both information and support. Efforts should focus on simplifying referral procedures and reaching families with lower educational levels, who currently seem to face barriers in accessing services.</p>

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Service Trajectories of Families with Young Children with Disabilities in Flanders: a Cluster Analysis of Support Patterns

  • Delphine West,
  • Frank Van Holen,
  • Camille Verheyden,
  • Nienke Derkoningen,
  • Matthias De Coster,
  • Johan Vanderfaeillie

摘要

Families of young children with disabilities or suspected disabilities often face a complex service landscape. In Flanders, little is known about the actual trajectories these families follow. This study surveyed 334 parents and used cluster analysis to identify service use patterns. Four clusters emerged: (1) families primarily supported by universal services, (2) families with limited service access, (3) families combining universal and specialized services, and (4) families primarily relying on specialized services. Families in the first two clusters had significantly lower educational levels than families in the last two. Genetic conditions and complex medical needs were more common in the cluster with specialized support (4) and less in the cluster with limited service access (2). It is important to ensure low-threshold access to both information and support. Efforts should focus on simplifying referral procedures and reaching families with lower educational levels, who currently seem to face barriers in accessing services.