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<p>Infancy and toddlerhood are periods of rapid development which could be significantly compromised by the diagnosis of cancer and its treatment. The aim of this study was to describe health-related quality of life (HRQOL) in infants/toddlers diagnosed with cancer and their caregivers over time and identify whether treatment variables and caregiver HRQOL are associated with infant/toddler HRQOL. HRQOL was assessed by parent-proxy reports among infants/toddlers (N = 39) and their caregivers (N = 39) at three timepoints (baseline, 6&#xa0;months, 12&#xa0;months). Linear mixed models were used to investigate whether demographic and treatment variables, caregiver HRQOL, and caregiver distress was associated with infant/toddler and caregiver HRQOL over time. No statistically significant variables were found to be associated with caregiver HRQOL, including infant/toddler HRQOL, time since diagnosis, income, and intensity of treatment. However, caregiver distress and infant/toddler HRQOL were bidirectionally related to each other over time, whereby higher infant/toddler HRQOL was associated with lower caregiver distress, and vice versa. Infants/toddlers with cancer and their caregivers experience psychosocial challenges. Interventions targeting caregivers that emphasize the importance of the caregiver–child relationship, and self-care are important. Health care providers should screen caregivers to assess their well-being and provide appropriate supports when needed.</p>

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Factors Related to Parent and Child Health-Related Quality of Life Among Infants and Toddlers with Cancer

  • 期刊论文

  • 发表日期：

    2025年12月1日

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  • Sara Cho,
  • Hailey Zwicker,
  • Sharon Hou,
  • Iqra Rahamatullah,
  • Tak Fung,
  • Nicole Racine,
  • Janelle Morhun,
  • Gregory M. T. Guilcher,
  • Fiona S. M. Schulte

摘要

Infancy and toddlerhood are periods of rapid development which could be significantly compromised by the diagnosis of cancer and its treatment. The aim of this study was to describe health-related quality of life (HRQOL) in infants/toddlers diagnosed with cancer and their caregivers over time and identify whether treatment variables and caregiver HRQOL are associated with infant/toddler HRQOL. HRQOL was assessed by parent-proxy reports among infants/toddlers (N = 39) and their caregivers (N = 39) at three timepoints (baseline, 6 months, 12 months). Linear mixed models were used to investigate whether demographic and treatment variables, caregiver HRQOL, and caregiver distress was associated with infant/toddler and caregiver HRQOL over time. No statistically significant variables were found to be associated with caregiver HRQOL, including infant/toddler HRQOL, time since diagnosis, income, and intensity of treatment. However, caregiver distress and infant/toddler HRQOL were bidirectionally related to each other over time, whereby higher infant/toddler HRQOL was associated with lower caregiver distress, and vice versa. Infants/toddlers with cancer and their caregivers experience psychosocial challenges. Interventions targeting caregivers that emphasize the importance of the caregiver–child relationship, and self-care are important. Health care providers should screen caregivers to assess their well-being and provide appropriate supports when needed.