<p>Parents of children with autism spectrum disorder (ASD) play a pivotal role in securing adequate services and supports. This study examined, from a Swiss parental perspective, (a) the support needs of families raising a child with ASD, (b) the broader impact of ASD on family functioning, and (c) parents’ psychological resources. A convergent parallel mixed methods cross-sectional design was used, in which qualitative and quantitative data were collected simultaneously, analyzed independently, and then integrated during interpretation. A total of 88 parents participated in the qualitative part of the study, and within that sample, 60 also completed the quantitative part. Thematic analysis of interview data yielded seven major themes: (1) services for children with ASD, (2) social support, (3) help and services for parents, (4) ASD diagnosis and its impact on the family, (5) sibling relationships, (6) schooling, and (7) societal attitudes. Parents consistently expressed the need for more specialized ASD providers, enhanced recreational opportunities for their children, counseling and parent-training programs, and implementation of a case-management system to coordinate care. Quantitative analyses indicated that higher parental resilience was significantly associated with greater parenting self-efficacy, lower parenting stress, and fewer symptoms of depression and psychological distress. Integration of qualitative and quantitative results revealed that, despite higher resilience and better psychological functioning, parents faced substantial unmet needs when navigating support systems. These findings underscore the necessity of targeted, family-centered interventions—such as early screening and diagnosis, evidence-based treatment and parent training, and case management—to enhance support for families of children with ASD. Practical implications of these findings for supporting families of children on the autism spectrum are discussed.</p>

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Parents’ Perspectives Regarding Support for Raising a Child on the Autism Spectrum in Switzerland: A Mixed-Methods Study

  • Isabella Mutschler Collins,
  • Mathias Durrer,
  • Jasmine Deraita,
  • Andrea H. Meyer

摘要

Parents of children with autism spectrum disorder (ASD) play a pivotal role in securing adequate services and supports. This study examined, from a Swiss parental perspective, (a) the support needs of families raising a child with ASD, (b) the broader impact of ASD on family functioning, and (c) parents’ psychological resources. A convergent parallel mixed methods cross-sectional design was used, in which qualitative and quantitative data were collected simultaneously, analyzed independently, and then integrated during interpretation. A total of 88 parents participated in the qualitative part of the study, and within that sample, 60 also completed the quantitative part. Thematic analysis of interview data yielded seven major themes: (1) services for children with ASD, (2) social support, (3) help and services for parents, (4) ASD diagnosis and its impact on the family, (5) sibling relationships, (6) schooling, and (7) societal attitudes. Parents consistently expressed the need for more specialized ASD providers, enhanced recreational opportunities for their children, counseling and parent-training programs, and implementation of a case-management system to coordinate care. Quantitative analyses indicated that higher parental resilience was significantly associated with greater parenting self-efficacy, lower parenting stress, and fewer symptoms of depression and psychological distress. Integration of qualitative and quantitative results revealed that, despite higher resilience and better psychological functioning, parents faced substantial unmet needs when navigating support systems. These findings underscore the necessity of targeted, family-centered interventions—such as early screening and diagnosis, evidence-based treatment and parent training, and case management—to enhance support for families of children with ASD. Practical implications of these findings for supporting families of children on the autism spectrum are discussed.