Purpose <p>Literature points to the efficacy of Pivotal Response Treatment (PRT) in supporting children with autism in improving social communication. Given PRT’s positive impact on skill development and its child-centered, play-based implementation, it is plausible that it could have positive impacts on child quality of life (QoL), an important outcome according to autistic self-advocates and family members. However, few studies have investigated QoL as an intervention outcome.</p> Methods <p>We combined data from four randomized controlled trials of PRT with young autistic children (<i>N</i> = 160). All studies included parent training; two also included clinician-delivered intervention. Control group participants received treatment as usual in the community. Parents filled out the Pediatric Quality of Life Inventory before and after 12 weeks of intervention. Analysis of covariance models assessed whether receiving PRT led to changes in QoL, controlling for child age.</p> Results <p>Baseline QoL ratings varied, with Physical QoL rated highest and Social QoL lowest. QoL change was not dependent on whether studies included only parent training versus also included clinician-delivered PRT. There were no significant impacts of intervention group on changes in QoL from baseline to post-intervention.</p> Conclusion <p>Despite benefits in social communication, short-term PRT did not lead to increases in parent-reported child QoL. While it is possible that PRT does not impact child QoL, future research should consider whether other measures of child QoL are more likely to be sensitive to change, ensure autistic conceptualizations of QoL are incorporated, and investigate the impact of PRT on QoL over longer periods of time.</p>

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Child Quality of Life as an Outcome Following Pivotal Response Treatment: Findings From Four Randomized Controlled Trials With Autistic Children

  • Rachel K. Schuck,
  • Emily F. Ferguson,
  • Emily K. Spackman,
  • Ella Jevtic,
  • M. Estefania Millan,
  • Katherine Paszek,
  • Hamidreza Komaki,
  • Qianheng Ma,
  • Jennifer M. Phillips,
  • Mirko Uljarević,
  • Grace W. Gengoux,
  • Antonio Y. Hardan

摘要

Purpose

Literature points to the efficacy of Pivotal Response Treatment (PRT) in supporting children with autism in improving social communication. Given PRT’s positive impact on skill development and its child-centered, play-based implementation, it is plausible that it could have positive impacts on child quality of life (QoL), an important outcome according to autistic self-advocates and family members. However, few studies have investigated QoL as an intervention outcome.

Methods

We combined data from four randomized controlled trials of PRT with young autistic children (N = 160). All studies included parent training; two also included clinician-delivered intervention. Control group participants received treatment as usual in the community. Parents filled out the Pediatric Quality of Life Inventory before and after 12 weeks of intervention. Analysis of covariance models assessed whether receiving PRT led to changes in QoL, controlling for child age.

Results

Baseline QoL ratings varied, with Physical QoL rated highest and Social QoL lowest. QoL change was not dependent on whether studies included only parent training versus also included clinician-delivered PRT. There were no significant impacts of intervention group on changes in QoL from baseline to post-intervention.

Conclusion

Despite benefits in social communication, short-term PRT did not lead to increases in parent-reported child QoL. While it is possible that PRT does not impact child QoL, future research should consider whether other measures of child QoL are more likely to be sensitive to change, ensure autistic conceptualizations of QoL are incorporated, and investigate the impact of PRT on QoL over longer periods of time.