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<p>Lived experience-led mental health research remains marginalized despite policy calls for recognition and inclusion. The co-produced ‘Paths to Everyday life’ (PEER) trial showed that group-based peer support improves personal recovery, functioning and quality of life in community settings yet faced epistemic biases favoring clinical or service-defined outcomes, ethics restrictions on peer facilitation, and rejections from high-impact journals. This commentary urges funders, editors, and ethics bodies to promote power-sharing, user-defined measures like empowerment, and community-driven trials for equitable, sustainable mental health research and care.</p>

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An Equal Role for Lived Experience-Led Mental Health Research

  • 期刊论文

  • 发表日期：

    2026年4月29日

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  • Chalotte Heinsvig Poulsen,
  • Klavs Serup Rasmussen,
  • Cecilie Høgh Egmose,
  • Bea Ebersbach,
  • Lene Falgaard Eplov

摘要

Lived experience-led mental health research remains marginalized despite policy calls for recognition and inclusion. The co-produced ‘Paths to Everyday life’ (PEER) trial showed that group-based peer support improves personal recovery, functioning and quality of life in community settings yet faced epistemic biases favoring clinical or service-defined outcomes, ethics restrictions on peer facilitation, and rejections from high-impact journals. This commentary urges funders, editors, and ethics bodies to promote power-sharing, user-defined measures like empowerment, and community-driven trials for equitable, sustainable mental health research and care.