Scholarlink

<p>Persistent tic disorders (PTD), including Tourette Syndrome (TS), impact individuals’ lives well beyond motor and vocal tics, affecting self-beliefs, relationships, and daily functioning. This qualitative study examined stigma and discrimination experienced by youth and adults with TS, their caregivers, and healthcare providers through in-depth interviews with 35 participants. Thematic analysis revealed four major themes: limited resources and funding, widespread misconceptions and stereotypes, negative experiences shaping self-perceptions and behaviors, and the importance of supportive environments in fostering resilience. Participants reported that widespread misunderstanding and exclusion led to significant psychosocial challenges, which were often more disruptive than the tics themselves. The findings highlight the need for clinical and behavioral interventions that address broader psychosocial issues, not just symptom management. Future research should explore resilience and protective factors that may help buffer against adverse experiences and improve psychosocial outcomes. This study was pre-registered at ClinicalTrials.gov (NCT05696769) and the Open Science Framework <a href="https://doi.org/10.17605/OSF.IO/EX52G">https://doi.org/10.17605/OSF.IO/EX52G</a>.</p>

错误：搜索内容不能为空，请输入英文关键词
错误：关键词超出字数限制，请精简
高级检索

Beyond the Tics: Experiences of Stigma and Psychosocial Impact in Tourette Syndrome

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年1月24日

查看全文
  • Jaclyn M. Martindale,
  • Leah Chapman,
  • Andrew Jack Carson,
  • Kandice Reilly,
  • Melina Malli,
  • Eric A. Storch,
  • John Salsman,
  • Stephanie Daniel

摘要

Persistent tic disorders (PTD), including Tourette Syndrome (TS), impact individuals’ lives well beyond motor and vocal tics, affecting self-beliefs, relationships, and daily functioning. This qualitative study examined stigma and discrimination experienced by youth and adults with TS, their caregivers, and healthcare providers through in-depth interviews with 35 participants. Thematic analysis revealed four major themes: limited resources and funding, widespread misconceptions and stereotypes, negative experiences shaping self-perceptions and behaviors, and the importance of supportive environments in fostering resilience. Participants reported that widespread misunderstanding and exclusion led to significant psychosocial challenges, which were often more disruptive than the tics themselves. The findings highlight the need for clinical and behavioral interventions that address broader psychosocial issues, not just symptom management. Future research should explore resilience and protective factors that may help buffer against adverse experiences and improve psychosocial outcomes. This study was pre-registered at ClinicalTrials.gov (NCT05696769) and the Open Science Framework https://doi.org/10.17605/OSF.IO/EX52G.