Purpose <p>To identify barriers and facilitators for survey completion in the VOICES of Black Women (VOICES) study and to determine which communication methods encouraged survey completion.</p> Methods <p>In 2023, the American Cancer Society piloted VOICES, an online study to better understand cancer and other health conditions among Black women. Approximately 2/3 of the 243 women who registered and consented did not complete the baseline survey (<i>n</i> = 140). In 2024, we sequentially employed four methods of communication to contact non-responders: email, mailed postcard, text message, and phone. At each touchpoint, we requested participants answer three questions about why they had not completed the survey.</p> Results <p>Thirty women (22%) completed the non-responder survey. Time was the most common issue for non-completion (<i>n</i> = 18). Some participants indicated that adjustments to communication, survey design, and survey navigation could facilitate completion. Emailing produced the highest number of responses to the non-responder survey (15/138; 11%) and subsequent baseline survey completion (5/15, 33%).</p> Conclusion <p>Despite a lack of time among other barriers, VOICES non-responders were willing to complete the baseline survey and provide feedback on the survey process.</p>

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Lessons learned: drivers of non-response in a large population-based cohort study of Black women

  • Jeuneviette E. Bontemps-Jones,
  • Lauren E. McCullough,
  • Elizabeth G. Kirkland,
  • Lauren R. Teras,
  • Maddison L. Hall,
  • Peter J. Briggs,
  • Daniela M. Dudas,
  • Maria Moore,
  • Jamal Winn,
  • Alpa V. Patel

摘要

Purpose

To identify barriers and facilitators for survey completion in the VOICES of Black Women (VOICES) study and to determine which communication methods encouraged survey completion.

Methods

In 2023, the American Cancer Society piloted VOICES, an online study to better understand cancer and other health conditions among Black women. Approximately 2/3 of the 243 women who registered and consented did not complete the baseline survey (n = 140). In 2024, we sequentially employed four methods of communication to contact non-responders: email, mailed postcard, text message, and phone. At each touchpoint, we requested participants answer three questions about why they had not completed the survey.

Results

Thirty women (22%) completed the non-responder survey. Time was the most common issue for non-completion (n = 18). Some participants indicated that adjustments to communication, survey design, and survey navigation could facilitate completion. Emailing produced the highest number of responses to the non-responder survey (15/138; 11%) and subsequent baseline survey completion (5/15, 33%).

Conclusion

Despite a lack of time among other barriers, VOICES non-responders were willing to complete the baseline survey and provide feedback on the survey process.