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<p>Structural inequities in the U.S. healthcare system contribute to disparities in access and outcomes for racial and ethnic minority patients. This study examined the experiences of Black, Hispanic, and Non-Hispanic White (NHW) patients receiving neurosurgical care within a large academic health system.&#xa0;A validated survey was distributed to 400 patients treated for brain and spinal cord tumors between October 2022 and March 2023. The survey assessed barriers to access, patient-provider interactions, and overall satisfaction. Chi-squared tests were used for categorical variables, and Kruskal-Wallis tests for continuous variables. Qualitative responses were coded and thematically analyzed using COREQ guidelines.&#xa0;89 patients completed the survey (12 Black, 19 Hispanic, 58 NHW). There were no significant differences in overall satisfaction (100% service recommendation rate for all groups). Statistically significant group differences emerged in awareness of shuttle services (Black: 36.4%, Hispanic: 53.3%, NHW: 14.6%; <i>p</i> &lt; 0.01) and preference for a non-English language (Black: 9.1%, Hispanic: 27.8%, NHW: 1.8%; <i>p</i> &lt; 0.01) and gender concordance in medical care (Black: 8.3%, Hispanic: 31.6%, NHW: 5.3%; <i>p</i> &lt; 0.01). Qualitative themes highlighted barriers to portal use, including digital literacy and language challenges, as well as the importance of trust and continuity of care.&#xa0;Although patient satisfaction was high across groups, structural barriers, including transportation and language access, continue to disproportionately affect Black and Hispanic patients. Addressing these challenges will require patient-centered strategies such as strengthening interpreter and transportation services, expanding digital support, and advancing workforce diversity to promote equitable neurosurgical care.</p>

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United against racism: enhancing access and patient experience for black and Hispanic patients in Neuro-oncological care

  • 期刊论文

  • 发表日期：

    2025年12月5日

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  • Emmy Duerr,
  • Rishab Ramapriyan,
  • Emmanuel O. Mensah,
  • Jasmine G. Hughes,
  • Taylor Mitchell,
  • Maxwell F. Blanch,
  • Lydia Headley,
  • Edwin Owolo,
  • Jean-Valery Coumans,
  • Bob Carter,
  • John Shin,
  • Elie Massaad,
  • Wenya Bi,
  • William Curry,
  • Theresa Williamson

摘要

Structural inequities in the U.S. healthcare system contribute to disparities in access and outcomes for racial and ethnic minority patients. This study examined the experiences of Black, Hispanic, and Non-Hispanic White (NHW) patients receiving neurosurgical care within a large academic health system. A validated survey was distributed to 400 patients treated for brain and spinal cord tumors between October 2022 and March 2023. The survey assessed barriers to access, patient-provider interactions, and overall satisfaction. Chi-squared tests were used for categorical variables, and Kruskal-Wallis tests for continuous variables. Qualitative responses were coded and thematically analyzed using COREQ guidelines. 89 patients completed the survey (12 Black, 19 Hispanic, 58 NHW). There were no significant differences in overall satisfaction (100% service recommendation rate for all groups). Statistically significant group differences emerged in awareness of shuttle services (Black: 36.4%, Hispanic: 53.3%, NHW: 14.6%; p < 0.01) and preference for a non-English language (Black: 9.1%, Hispanic: 27.8%, NHW: 1.8%; p < 0.01) and gender concordance in medical care (Black: 8.3%, Hispanic: 31.6%, NHW: 5.3%; p < 0.01). Qualitative themes highlighted barriers to portal use, including digital literacy and language challenges, as well as the importance of trust and continuity of care. Although patient satisfaction was high across groups, structural barriers, including transportation and language access, continue to disproportionately affect Black and Hispanic patients. Addressing these challenges will require patient-centered strategies such as strengthening interpreter and transportation services, expanding digital support, and advancing workforce diversity to promote equitable neurosurgical care.