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Background <p>Due to substantial advances in diagnostics and treatment, more than 80% of children and adolescents now survive cancer. At the same time, long-term psychosocial burdens affecting patients and their families are increasingly gaining attention. Particularly after completion of acute treatment, emotional distress and psychosocial support needs often persist.</p> Objective <p>The study investigated biopsychosocial burdens, resources, and support needs of families within the first 5&#xa0;years after completion of acute cancer treatment of a&#xa0;child. The aim was to identify relevant areas of need and to derive implications for psychosocial care.</p> Materials and methods <p>A&#xa0;mixed methods design combining qualitative and quantitative approaches was applied. Psychological distress, health-related quality of life, social limitations, support needs, and experiences with psychosocial care services were assessed from the perspectives of children and adolescents, parents, and siblings. In addition, gaps in care and barriers to accessing psychosocial support were analyzed.</p> Results <p>The findings indicate that psychosocial burdens frequently persist beyond the end of treatment among children and adolescents, parents, and siblings. Particularly relevant were emotional distress, fatigue, concerns regarding long-term health consequences, and challenges in family and social life. At the same time, many families demonstrated resilient coping and reported feeling sufficiently supported. Nevertheless, numerous families experienced difficulties accessing psychosocial support services.</p> Conclusion <p>The findings highlight the need for long-term, family-oriented, and cross-sectoral psychosocial follow-up care in pediatric oncology. In addition to the early identification of psychosocially burdened families, greater attention should be paid to existing resources and resilience factors in order to strengthen long-term adaptation and well-being.</p>

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Familien krebskranker Kinder in der Nachsorge

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年7月17日

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  • Verena Paul,
  • Désirée Sigmund,
  • Stefan Rutkowski,
  • Gabriele Escherich,
  • Corinna Bergelt,
  • Laura Inhestern

摘要

Background

Due to substantial advances in diagnostics and treatment, more than 80% of children and adolescents now survive cancer. At the same time, long-term psychosocial burdens affecting patients and their families are increasingly gaining attention. Particularly after completion of acute treatment, emotional distress and psychosocial support needs often persist.

Objective

The study investigated biopsychosocial burdens, resources, and support needs of families within the first 5 years after completion of acute cancer treatment of a child. The aim was to identify relevant areas of need and to derive implications for psychosocial care.

Materials and methods

A mixed methods design combining qualitative and quantitative approaches was applied. Psychological distress, health-related quality of life, social limitations, support needs, and experiences with psychosocial care services were assessed from the perspectives of children and adolescents, parents, and siblings. In addition, gaps in care and barriers to accessing psychosocial support were analyzed.

Results

The findings indicate that psychosocial burdens frequently persist beyond the end of treatment among children and adolescents, parents, and siblings. Particularly relevant were emotional distress, fatigue, concerns regarding long-term health consequences, and challenges in family and social life. At the same time, many families demonstrated resilient coping and reported feeling sufficiently supported. Nevertheless, numerous families experienced difficulties accessing psychosocial support services.

Conclusion

The findings highlight the need for long-term, family-oriented, and cross-sectoral psychosocial follow-up care in pediatric oncology. In addition to the early identification of psychosocially burdened families, greater attention should be paid to existing resources and resilience factors in order to strengthen long-term adaptation and well-being.