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Purpose <p>Survivors of childhood, adolescent, and young adult (CAYA) cancer face lifelong risks of treatment-related late effects, emphasizing the need for innovative, person-centred survivorship care. The PanCareFollowUp (PCFU) Care intervention, based on person-centred care (PCC), prioritizes survivors' values and needs. This paper describes the evaluation of experiences of healthcare professionals’ (HCPs) and supporting staff’s experiences with the training package that was developed for implementation of PCC in the PCFU Care.</p> Methods <p>To support PCC delivery, a training package, including a training presentation with voice-over and a workshop, was developed. Healthcare professionals (HCPs) and supporting staff from four European survivorship clinics evaluated the training package through questionnaires measuring readiness to apply PCC, knowledge, confidence, perceived utility, and tool-related experiences.</p> Results <p>Eighteen HCPs evaluated the training presentation. Readiness to apply PCC increased from 68% pre-training to 89% post-training, while confidence declined from 78% to 68%. Most participants reported improved knowledge, with 94% indicating at least some increase. Frameworks such as Ekman’s pillars, the seven steps for a PCC consultation, and shared decision-making questions were rated highly useful. Twenty-eight HCPs evaluated the workshop; 82% found it useful and 82% reported an overall favourable impression. Participants valued open discussion, multidisciplinary perspectives, and survivor involvement. The workshop’s short duration and more broadly, limited time, staff shortages, and digital infrastructure were identified as barriers to PCC implementation.</p> Conclusion <p>This multi-country evaluation shows that even brief PCC training can enhance HCPs’ readiness to deliver person-centred survivorship care. The findings highlight both the potential of concise educational interventions and the importance of delivery format and organizational context for the sustainable implementation of PCC across survivorship care settings.</p>

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A multi‑country evaluation of healthcare professionals’ experiences with the PanCareFollowUp training package to implement person-centred care in childhood cancer survivorship care: A PanCareFollowUp study

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年6月30日

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  • Jacqueline J. Loonen,
  • Eline Bouwman,
  • Adriaan Penson,
  • Cecilia Follin,
  • Anne Uyttebroeck,
  • Dionne Breij,
  • Katerina Kepakova,
  • Sofie Prikken,
  • Lars Hjorth,
  • Jeanette F. Winther,
  • Helena J. H. van der Pal,
  • Carina Schneider,
  • Anita Kienesberger,
  • Hannah Gsell,
  • Gisela Michel,
  • Saskia M. F. Pluijm,
  • Roderick Skinner,
  • Leontien C. M. Kremer,
  • Monica Muraca,
  • Tomas Kepak,
  • Rosella P. M. G. Hermens

摘要

Purpose

Survivors of childhood, adolescent, and young adult (CAYA) cancer face lifelong risks of treatment-related late effects, emphasizing the need for innovative, person-centred survivorship care. The PanCareFollowUp (PCFU) Care intervention, based on person-centred care (PCC), prioritizes survivors' values and needs. This paper describes the evaluation of experiences of healthcare professionals’ (HCPs) and supporting staff’s experiences with the training package that was developed for implementation of PCC in the PCFU Care.

Methods

To support PCC delivery, a training package, including a training presentation with voice-over and a workshop, was developed. Healthcare professionals (HCPs) and supporting staff from four European survivorship clinics evaluated the training package through questionnaires measuring readiness to apply PCC, knowledge, confidence, perceived utility, and tool-related experiences.

Results

Eighteen HCPs evaluated the training presentation. Readiness to apply PCC increased from 68% pre-training to 89% post-training, while confidence declined from 78% to 68%. Most participants reported improved knowledge, with 94% indicating at least some increase. Frameworks such as Ekman’s pillars, the seven steps for a PCC consultation, and shared decision-making questions were rated highly useful. Twenty-eight HCPs evaluated the workshop; 82% found it useful and 82% reported an overall favourable impression. Participants valued open discussion, multidisciplinary perspectives, and survivor involvement. The workshop’s short duration and more broadly, limited time, staff shortages, and digital infrastructure were identified as barriers to PCC implementation.

Conclusion

This multi-country evaluation shows that even brief PCC training can enhance HCPs’ readiness to deliver person-centred survivorship care. The findings highlight both the potential of concise educational interventions and the importance of delivery format and organizational context for the sustainable implementation of PCC across survivorship care settings.