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Purpose <p>Cancer-related fatigue (CRF) is a debilitating symptom commonly reported by people with a brain tumour (BT). Many interventions have been developed to reduce CRF; however, few have been evaluated in people with BT despite the unique functional deficits experienced by this population. We aimed to explore the appropriateness of a web-based intervention (RESTORE) to support self-management of fatigue for people with a BT and identify recommended modifications.</p> Methods <p>Semi-structured interviews were conducted with people with BT, their caregivers and healthcare professionals (HCPs) who treat them. Interviews explored the appropriateness of RESTORE for this population, and suggested modifications to improve relevance and suitability. Interviews were transcribed and analysed thematically using interpretive description to devise recommendations.</p> Results <p>Forty participants were interviewed (24 people with BT, 5 caregivers, 11 HCPs). Four themes were identified: feedback on content; feedback on format; feedback on use; and, barriers to engagement. These themes were linked by an overarching need for flexible and responsive tailoring to the unique needs of people with BT. Thirty-two recommended modifications were derived from feedback to optimise RESTORE for this population.</p> Conclusion <p>Results suggest a BT-specific version of RESTORE would be acceptable to address fatigue in this population. Recommended adaptations include greater flexibility and tailoring of content and format for effective use among people with BT. Barriers to engagement including digital access and literacy and awareness of the resource should be addressed in the implementation of a BT-specific version of RESTORE.</p>

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Co-designing a web-based intervention (RESTORE) to support self-management of cancer-related fatigue in people living with a brain tumour

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2025年4月28日

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  • R. Campbell,
  • J. M. Shaw,
  • H. Banks,
  • T. Carlick,
  • M. M. Faris,
  • M. S. Jeon,
  • D. Legge,
  • C. Foster,
  • R. Leonard,
  • R. J. Chan,
  • M. R. Agar,
  • A. Miller,
  • H. M. Dhillon,
  • Thea Blackler,
  • Georgia Halkett,
  • Helen Haydon,
  • Brian Kelly,
  • Eng-Siew Koh,
  • Anna Nowak,
  • Tamara Ownsworth,
  • Kerryn Pike,
  • Nicole Rankin,
  • Ursula Sansom-Daly,
  • Joel Rhee,
  • Kristi Milley,
  • Katarzyna Lion,
  • Jill Chen,
  • Tiffany Fazon,
  • Melinda Lyne,
  • Sian Virtue-Griffiths,
  • Kathryn Vitangcol,
  • Jessica Buster,
  • Emma McDougall

摘要

Purpose

Cancer-related fatigue (CRF) is a debilitating symptom commonly reported by people with a brain tumour (BT). Many interventions have been developed to reduce CRF; however, few have been evaluated in people with BT despite the unique functional deficits experienced by this population. We aimed to explore the appropriateness of a web-based intervention (RESTORE) to support self-management of fatigue for people with a BT and identify recommended modifications.

Methods

Semi-structured interviews were conducted with people with BT, their caregivers and healthcare professionals (HCPs) who treat them. Interviews explored the appropriateness of RESTORE for this population, and suggested modifications to improve relevance and suitability. Interviews were transcribed and analysed thematically using interpretive description to devise recommendations.

Results

Forty participants were interviewed (24 people with BT, 5 caregivers, 11 HCPs). Four themes were identified: feedback on content; feedback on format; feedback on use; and, barriers to engagement. These themes were linked by an overarching need for flexible and responsive tailoring to the unique needs of people with BT. Thirty-two recommended modifications were derived from feedback to optimise RESTORE for this population.

Conclusion

Results suggest a BT-specific version of RESTORE would be acceptable to address fatigue in this population. Recommended adaptations include greater flexibility and tailoring of content and format for effective use among people with BT. Barriers to engagement including digital access and literacy and awareness of the resource should be addressed in the implementation of a BT-specific version of RESTORE.