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Background <p>Caring for individuals with dementia at home poses significant challenges for family caregivers, particularly in families with a&#xa0;migration background. Previous studies have primarily relied on interviews and surveys, which may be biased by shame and social desirability. In contrast, caregivers often express themselves more spontaneously and less filtered on social media, potentially providing new insights into their reality of life.</p> Objective <p>This study aims to examine social media posts from Turkish origin family caregivers regarding their experiences in the context of home care.</p> Methods <p>A&#xa0;total of 123 posts from Instagram, Facebook, TikTok, YouTube and online forums were analyzed using qualitative content analysis.</p> Results <p>Overall, three main themes were identified: (1)&#xa0;psychological and physical burdens, (2)&#xa0;criticism of the healthcare system, and (3)&#xa0;managing caregiving responsibilities.</p> Discussion <p>Social media offer a&#xa0;space for exchange and support for family caregivers, while structural deficits, lack of culturally sensitive services and bureaucratic barriers complicate care. The often culturally embedded responsibility for family-based care can be both a&#xa0;source of overload and a&#xa0;resource. Future measures should promote structural improvements and diversity-sensitive support services.</p>

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Erfahrungen von türkeistämmigen pflegenden Angehörigen von Menschen mit Demenz in Deutschland – Eine qualitative Analyse von Beiträgen in Sozialen Medien

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2026年1月12日

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  • Kübra Annac,
  • Alena Allak,
  • Selina Bayrak,
  • Yüce Yilmaz-Aslan,
  • Patrick Brzoska

摘要

Background

Caring for individuals with dementia at home poses significant challenges for family caregivers, particularly in families with a migration background. Previous studies have primarily relied on interviews and surveys, which may be biased by shame and social desirability. In contrast, caregivers often express themselves more spontaneously and less filtered on social media, potentially providing new insights into their reality of life.

Objective

This study aims to examine social media posts from Turkish origin family caregivers regarding their experiences in the context of home care.

Methods

A total of 123 posts from Instagram, Facebook, TikTok, YouTube and online forums were analyzed using qualitative content analysis.

Results

Overall, three main themes were identified: (1) psychological and physical burdens, (2) criticism of the healthcare system, and (3) managing caregiving responsibilities.

Discussion

Social media offer a space for exchange and support for family caregivers, while structural deficits, lack of culturally sensitive services and bureaucratic barriers complicate care. The often culturally embedded responsibility for family-based care can be both a source of overload and a resource. Future measures should promote structural improvements and diversity-sensitive support services.