Scholarlink

Background and objectives <p>The diagnosis and surgery of congenital lung malformations (CLMs) affect not only children’s physical health but also emotional, psychological, and social well-being of their families. This study assessed the long-term quality of life (QoL) and psychological impact in families of children who underwent surgery for CLMs during infancy.</p> Methods <p>In May 2024, the national CLM patient association invited parents of children with surgically treated CLMs to complete Parenting Stress Index, Pediatric Quality of Life Inventory (PedsQL), and PedsQL Healthcare Satisfaction Module. Most children had undergone surgery in infancy and were grouped by current age (13–24 months, 2–4 years, 5–7 years, and 8–12 years). The survey assessed parents’ current perceptions of their child’s QoL, their own stress, and healthcare satisfaction. Maternal and paternal responses were compared, and linear regression explored associations with clinical variables.</p> Results <p>Seventy-eight mothers and 47 fathers responded. Overall QoL was high. Lower scores were associated with lack of psychological support and longer hospital stays. Compared to norms, children reported reduced emotional and school functioning. Fathers expressed higher satisfaction, while mothers reported greater distress, especially in the 8–12 year group.</p> Conclusions <p>Children generally experience good long-term QoL, but families, particularly mothers, report persistent psychological distress. Integrating psychological care into long-term follow-up is essential.</p>

错误：搜索内容不能为空，请输入英文关键词
错误：关键词超出字数限制，请精简
高级检索

Quality of life and psychological impact in families with congenital lung malformations

  • 期刊论文

  • 发表日期：

    2025年11月20日

查看全文
  • Federica Pederiva,
  • Maria Elena Bolis,
  • Marilù Nassano,
  • Marta Quadrelli,
  • Barbara Sgobbi,
  • Paolo Dalena,
  • Massimo Agosti,
  • Valerio Gentilino

摘要

Background and objectives

The diagnosis and surgery of congenital lung malformations (CLMs) affect not only children’s physical health but also emotional, psychological, and social well-being of their families. This study assessed the long-term quality of life (QoL) and psychological impact in families of children who underwent surgery for CLMs during infancy.

Methods

In May 2024, the national CLM patient association invited parents of children with surgically treated CLMs to complete Parenting Stress Index, Pediatric Quality of Life Inventory (PedsQL), and PedsQL Healthcare Satisfaction Module. Most children had undergone surgery in infancy and were grouped by current age (13–24 months, 2–4 years, 5–7 years, and 8–12 years). The survey assessed parents’ current perceptions of their child’s QoL, their own stress, and healthcare satisfaction. Maternal and paternal responses were compared, and linear regression explored associations with clinical variables.

Results

Seventy-eight mothers and 47 fathers responded. Overall QoL was high. Lower scores were associated with lack of psychological support and longer hospital stays. Compared to norms, children reported reduced emotional and school functioning. Fathers expressed higher satisfaction, while mothers reported greater distress, especially in the 8–12 year group.

Conclusions

Children generally experience good long-term QoL, but families, particularly mothers, report persistent psychological distress. Integrating psychological care into long-term follow-up is essential.