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Purpose <p>Anorectal malformations (ARM) and Hirschsprung disease (HD) pose challenges not only in diagnosis and treatment but also in the psychological well-being of patients and their families. This study aims to report our single-center experience with psychological follow-up in these populations.</p> Methods <p>We conducted an observational, retrospective study by reviewing the clinical records of patients enrolled in our dedicated follow-up program who were born between 2009 and 2018. Neurodevelopmental assessments were performed during the first year of life, and psychological evaluations were conducted during childhood (ages 6–10) and adolescence (ages 13–18).</p> Results <p>The study included 167 patients (101 with ARM, 66 with HD). A total of 120 patients underwent neurodevelopmental assessment at a median age of 11&#xa0;months, yielding the following results (mean ± SD): cognitive: 105.4 ± 10.8; motor: 96.3 ± 9.5; language: 97.3 ± 9.2. Psychological follow-up was conducted in 139 children and 26 adolescents, with 35.3% of children and 38.5% of adolescents exhibiting psychopathological symptoms primarily of anxiety, depression, and attention deficit/hyperactivity disorder.</p> Conclusions <p>Although early neurodevelopmental outcomes are generally within typical limits, a significant proportion of children and adolescents with ARM and HD demonstrate psychological vulnerabilities. These findings underscore the importance of early identification and continued psychological support throughout development.</p>

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Integrating psychological support in the care of children and adolescents with anorectal malformation or Hirschsprung disease: a ten-year experience

  • 期刊论文

  • 发表日期：

    2025年6月24日

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  • Francesca Bevilacqua,
  • Chiara Iacusso,
  • Lucia Aite,
  • Laura Valfrè,
  • Mariamichela D’Astore,
  • Andrea Dotta,
  • Stefano Vicari,
  • Annabella Braguglia,
  • Deny Menghini,
  • Andrea Conforti,
  • Fabio Fusaro,
  • Barbara D. Iacobelli

摘要

Purpose

Anorectal malformations (ARM) and Hirschsprung disease (HD) pose challenges not only in diagnosis and treatment but also in the psychological well-being of patients and their families. This study aims to report our single-center experience with psychological follow-up in these populations.

Methods

We conducted an observational, retrospective study by reviewing the clinical records of patients enrolled in our dedicated follow-up program who were born between 2009 and 2018. Neurodevelopmental assessments were performed during the first year of life, and psychological evaluations were conducted during childhood (ages 6–10) and adolescence (ages 13–18).

Results

The study included 167 patients (101 with ARM, 66 with HD). A total of 120 patients underwent neurodevelopmental assessment at a median age of 11 months, yielding the following results (mean ± SD): cognitive: 105.4 ± 10.8; motor: 96.3 ± 9.5; language: 97.3 ± 9.2. Psychological follow-up was conducted in 139 children and 26 adolescents, with 35.3% of children and 38.5% of adolescents exhibiting psychopathological symptoms primarily of anxiety, depression, and attention deficit/hyperactivity disorder.

Conclusions

Although early neurodevelopmental outcomes are generally within typical limits, a significant proportion of children and adolescents with ARM and HD demonstrate psychological vulnerabilities. These findings underscore the importance of early identification and continued psychological support throughout development.