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<p>To improve patient advocacy in hemophilia, the World Federation of Hemophilia (WFH) recommends establishing a National Hemophilia Committee (NHC), developing standards and guidelines, broadening the community through including people with von Willebrand disease, other rare bleeding disorders and carriers of hemophilia. In 2018, the Egyptian Society of Hemophilia (ESH) took the initiative, developed, and published guidelines for Hemophilia A care [<CitationRef CitationID="CR1">1</CitationRef>] (Table&#xa0;1). Aim &amp; Methods given the cmanagement, the panel `s goal was to update the ESH guidelines for Hemophilia A care using the modified Delphi method to address unmet needs and local requirements in Egyptian healthcare settings and include management of obesity in hemophilia patients, oral health promotion and prophylaxis before dental procedures, routine monitoring of bleeding events and musculoskeletal scoring, treatment of central nervous system bleeding in children and neonates with hemophilia, the management of acquired hemophilia and hemophilia carrier, the use and monitoring of Non-factor replacement in prophylaxis, finally the implementation of transitional care and patient advocacy.</p>

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Updated Egyptian national guidelines for management of hemophilia A in children & adolescents

  • 期刊论文

  • 出版模式：

    开放获取

  • 发表日期：

    2025年10月9日

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  • Galila Mokhtar,
  • Amal El-Beshlawy,
  • Mohsen El Alfy,
  • Magdy El Ekiaby,
  • Magda Rakha,
  • Ahmed Mansour,
  • Azza A.G. Tantawy,
  • Hoda Hassab,
  • Usama El Safy,
  • Khaled A. Eid,
  • Naglaa Shaheen,
  • Naglaa Omar,
  • Sonia Adolf,
  • Seham Ragab,
  • Mohamed ElKholy,
  • Nayera H.K. Elsherif

摘要

To improve patient advocacy in hemophilia, the World Federation of Hemophilia (WFH) recommends establishing a National Hemophilia Committee (NHC), developing standards and guidelines, broadening the community through including people with von Willebrand disease, other rare bleeding disorders and carriers of hemophilia. In 2018, the Egyptian Society of Hemophilia (ESH) took the initiative, developed, and published guidelines for Hemophilia A care [1] (Table 1). Aim & Methods given the cmanagement, the panel `s goal was to update the ESH guidelines for Hemophilia A care using the modified Delphi method to address unmet needs and local requirements in Egyptian healthcare settings and include management of obesity in hemophilia patients, oral health promotion and prophylaxis before dental procedures, routine monitoring of bleeding events and musculoskeletal scoring, treatment of central nervous system bleeding in children and neonates with hemophilia, the management of acquired hemophilia and hemophilia carrier, the use and monitoring of Non-factor replacement in prophylaxis, finally the implementation of transitional care and patient advocacy.