<p>Sound social counselling for families with children with life-limiting illnesses provides support with financial and organizational issues and helps to understand the complex benefit entitlements and care systems. Health insurance covers benefits, such as inpatient treatment in children’s hospitals and pediatric palliative care units and the associated costs for accompanying persons, outpatient palliative care as well as inpatient and outpatient children’s hospice work, costs for medical aids and appliances, out-of-hospital intensive care, home help, travel costs and an extended children’s sickness benefit for progressive illnesses. Nursing care insurance includes care allowance, care benefits in kind, respite care, short-term care, care aids and remodelling assistance if the requirements are met. Refugees can apply for care assistance until the insurance period for long-term care insurance has been fulfilled. The determination of severe disability is a&#xa0;prerequisite for compensation for disadvantages and additional benefits. Integration assistance includes participation in education, social participation and rehabilitation. In their particular situation, parents have frequent absences, work part-time or have to give up work, so that various options for income replacement, part-time work or leave of absence are possible. Different time limits apply depending on the area of benefit. If benefits are refused, an appeal can be lodged and, if necessary, legal action can be taken. After the death of a&#xa0;child, rehabilitation is possible for orphaned families; if income and assets are low, the social welfare office will pay the funeral costs. Early consultation is essential to make optimal use of the diverse support options available.</p>

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Sozialrechtliche Aspekte bei lebenslimitierenden Erkrankungen im Kindes- und Jugendalter

  • Maria Janisch

摘要

Sound social counselling for families with children with life-limiting illnesses provides support with financial and organizational issues and helps to understand the complex benefit entitlements and care systems. Health insurance covers benefits, such as inpatient treatment in children’s hospitals and pediatric palliative care units and the associated costs for accompanying persons, outpatient palliative care as well as inpatient and outpatient children’s hospice work, costs for medical aids and appliances, out-of-hospital intensive care, home help, travel costs and an extended children’s sickness benefit for progressive illnesses. Nursing care insurance includes care allowance, care benefits in kind, respite care, short-term care, care aids and remodelling assistance if the requirements are met. Refugees can apply for care assistance until the insurance period for long-term care insurance has been fulfilled. The determination of severe disability is a prerequisite for compensation for disadvantages and additional benefits. Integration assistance includes participation in education, social participation and rehabilitation. In their particular situation, parents have frequent absences, work part-time or have to give up work, so that various options for income replacement, part-time work or leave of absence are possible. Different time limits apply depending on the area of benefit. If benefits are refused, an appeal can be lodged and, if necessary, legal action can be taken. After the death of a child, rehabilitation is possible for orphaned families; if income and assets are low, the social welfare office will pay the funeral costs. Early consultation is essential to make optimal use of the diverse support options available.