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Background <p>Individuals with nondialysis chronic kidney disease (ND-CKD) often report high somatic symptom burden, though traditional clinical approaches associate symptom burden only with advanced disease stages.</p> Objectives <p>This study compared the symptom burden in ND-CKD as perceived by physicians and patients.</p> Materials and methods <p>In a&#xa0;German-wide online survey, nephrologists identified the three most common symptoms and the mean symptom burden in CKD using an adapted version of the Chronic Kidney Disease Symptom Burden Index (CKD-SBI). Their assessments were compared with patients’ self-reports (CKD-SBI) from the SOMA.CK study.</p> Results <p>Responses from <i>N</i> = 108 nephrologists (average professional experience = 14.3 years) were compared with responses from <i>N</i> = 222 individuals with ND-CKD (average age = 61.22 years, standard deviation [SD] = 14.90). Nephrologists most frequently named fatigue (69.44%), oedema (38.89%) and arterial hypertension (35.19%), while patients named nycturia (74.30%), fatigue (61.30%) and sleeping problems (47.30%). Nephrologists significantly overestimated the overall symptom burden and the symptom burden of five single symptoms, while they assessed the severity of 12&#xa0;symptoms lower and 15&#xa0;symptoms as comparable.</p> Conclusion <p>A&#xa0;discrepancy between the symptom burden reported by physicians and patients with ND-CKD was shown. Thus, giving greater consideration to the patients’ perspectives in symptom assessment is recommended.</p>

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Symptombelastung bei chronischer Nierenerkrankung – nephrologische Einschätzung im Vergleich zur Betroffenenperspektive (SOMA.CK-Studie)

  • 期刊论文

  • 出版模式：

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  • 发表日期：

    2026年7月22日

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  • Birte Jessen,
  • Bernd Löwe,
  • Christian Schmidt-Lauber,
  • Tobias B. Huber,
  • Meike Shedden-Mora

摘要

Background

Individuals with nondialysis chronic kidney disease (ND-CKD) often report high somatic symptom burden, though traditional clinical approaches associate symptom burden only with advanced disease stages.

Objectives

This study compared the symptom burden in ND-CKD as perceived by physicians and patients.

Materials and methods

In a German-wide online survey, nephrologists identified the three most common symptoms and the mean symptom burden in CKD using an adapted version of the Chronic Kidney Disease Symptom Burden Index (CKD-SBI). Their assessments were compared with patients’ self-reports (CKD-SBI) from the SOMA.CK study.

Results

Responses from N = 108 nephrologists (average professional experience = 14.3 years) were compared with responses from N = 222 individuals with ND-CKD (average age = 61.22 years, standard deviation [SD] = 14.90). Nephrologists most frequently named fatigue (69.44%), oedema (38.89%) and arterial hypertension (35.19%), while patients named nycturia (74.30%), fatigue (61.30%) and sleeping problems (47.30%). Nephrologists significantly overestimated the overall symptom burden and the symptom burden of five single symptoms, while they assessed the severity of 12 symptoms lower and 15 symptoms as comparable.

Conclusion

A discrepancy between the symptom burden reported by physicians and patients with ND-CKD was shown. Thus, giving greater consideration to the patients’ perspectives in symptom assessment is recommended.