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<p>The Institute for Quality and Efficiency in Health Care (IQWiG) examines the benefits and harms of medical interventions for patients. It was founded in 2004. IQWiG also fulfills part of its statutory mandate to inform the public about health issues with the website gesundheitsinformation.de/informedhealth.org. The website addresses a&#xa0;wide range of health topics and is aimed at both ill and healthy individuals. IQWiG’s work is fundamentally oriented towards the needs of affected people (patients, family members, and other healthy target groups). IQWiG utilizes a&#xa0;range of methods to obtain information and data from affected individuals or representatives of patient organizations and draw on in its work. The spectrum of methods includes verbal survey methods such as individual interviews or focus groups, written surveys, and published qualitative research results. This article focuses on the integration of the perspectives of those affected people in the development of health information. IQWiG supposes that this integration is one important reason for the high level of acceptance of gesundheitsinformation.de. This is reflected, among other things, in the results of regular user testing, feedback from support groups, patient representatives, professionals, and, last but not least, the fact that the website has such a&#xa0;far-reaching digital presence.</p>

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Einbindung von Betroffenenperspektiven im Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen (IQWiG) mit Fokus auf die Erstellung von Gesundheitsinformationen

  • 期刊论文

  • 发表日期：

    2026年1月15日

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  • Milly Schröer-Günther,
  • Beate Zschorlich,
  • Sonja Siegert,
  • Klaus Koch

摘要

The Institute for Quality and Efficiency in Health Care (IQWiG) examines the benefits and harms of medical interventions for patients. It was founded in 2004. IQWiG also fulfills part of its statutory mandate to inform the public about health issues with the website gesundheitsinformation.de/informedhealth.org. The website addresses a wide range of health topics and is aimed at both ill and healthy individuals. IQWiG’s work is fundamentally oriented towards the needs of affected people (patients, family members, and other healthy target groups). IQWiG utilizes a range of methods to obtain information and data from affected individuals or representatives of patient organizations and draw on in its work. The spectrum of methods includes verbal survey methods such as individual interviews or focus groups, written surveys, and published qualitative research results. This article focuses on the integration of the perspectives of those affected people in the development of health information. IQWiG supposes that this integration is one important reason for the high level of acceptance of gesundheitsinformation.de. This is reflected, among other things, in the results of regular user testing, feedback from support groups, patient representatives, professionals, and, last but not least, the fact that the website has such a far-reaching digital presence.